Monthly Archives: January 2005

Reality TV.

Not the kind you think of though. I’m referring to NBC’s show ER. If you watched it, you saw a girl who received her father’s kidney due to PKD. The kidney, after two years, was damaged because of a new-on-the-market … Continue reading

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A quick study.

When you are raising kids with special needs, you are required to wear many hats. Medical and educational gatekeeper, nurse/doctor, personal assistant, pharmacist, lawyer, therapist, advocate, nutritionist, high up tight rope walker, and of course, Mom. I’m positive (she says … Continue reading

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Winter Break Letter

Dear Gage’s Teacher, This time of year is as fitting as ever to tell you how thankful we are that you are in Gage’s life. Last year around this time we were finishing up the details on Gage’s IEP and … Continue reading

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Lessons learned (and revisited) in 2004.

Hope springs eternal. Kids, no matter what you bribe them with or tell them, will never welcome needles of any kind. Appreciate excellent Doctors. Compassionate ones. The calling. The training. Their understanding (okay, that’s several things). There’s a reason we … Continue reading

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