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Monthly Archives: June 2006
Spoken in the mutant family household.
"Ya know, our life is crap." "As long as we both don’t think that at the same time we’ll be okay." We went in to see Dr. Caring today for Gage to get an initial exam for the transplant referral … Continue reading
Posted in Gage's new kidney adventure
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Photo Fun Friday
This is a blissful pool of sibs I tell you. Gage and Quinn and Luke (I say Lukey) and his older, much wiser sister Eliza. Three of the kids in this photo have ARPKD. Two of them are mine. All … Continue reading
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Photo Fun Friday
She’s a fashion diva. Oh yes she is. This is Quinn on "Date Night" with Mommy and Daddy. Gage was away with one of his most very fun cousins, Andrew having a ball and we were desperate to go out … Continue reading
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The Daddy mutant recessive half.
I know, I know. There’s more to us than one complete set of mutant genes. But lately that’s all the keeps coming up. On this Father’s Day I want to honor Julian for all of the reasons (I can think … Continue reading
Posted in General Family
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Photo Fun Friday
Given what we learned about Gage’s immediate future, it seems like a good time to show a picture of "Reflective Gage" (what we often call this look). He is usally in deep thought and doesn’t even know others are around … Continue reading
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"But he doesn't look sick."
That is the one statement we hear time after time. And while it’s mostly true, it’s proving harder to say with his skin color, energy level and sunken eyes. This is a picture from January. Not that long ago. Dr. … Continue reading
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Hardly doing anything.
Dr. Caring called me this morning to discuss Gage’s re-labs. I was out. Missed the call by approximately 3.5 minutes. Which puts me getting a call at the end of the day. After hours. Maybe. Which makes me crazy. And … Continue reading
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Why we love her.
Here are a series of emails from Dr. Wonderful after getting Gage’s lab results yesterday. This email correspondence occurred after 10pm. It’s no wonder we’re drawn to her. ME: I’m about to fax these, but here are the highlights from … Continue reading
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A Matter of Explanation.
SEVERAL people people have inquired about the monikers I have for our two nephrologists. Dr. Wonderful and Dr. Matter of Fact (formerly Dr. Kind). These people thought that I might be showing favoritism by giving a warm and fuzzy name … Continue reading
Posted in Story telling
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Photo Fun Friday
She’s either proud of how she can finally make the swing go or she is extremely happy to show off her self written name tag or she is excited that she can use a straw without opening her mouth. Take … Continue reading
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