Monthly Archives: October 2006

Photo Fun Friday

Posted on October 27, 2006 by Julia Roberts

I am leaving town to go to a PKD Foundation board meeting and instead of packing the night before I was making a mummy costume for Gage. I would have been making it Sunday night to prepare for a dialysis … Continue reading →

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What is he really thinking?

Posted on October 25, 2006 by Julia Roberts

Gage has known that he would need a transplant for a very long time. We used to mention it in passing but started weaving it into everyday conversations like "Gage, what do you want for lunch and did you know … Continue reading →

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Intuition

Posted on October 24, 2006 by Julia Roberts

I knew I wouldn’t be able to donate a kidney to Gage or Quinn. Nearly two years ago when this happened I’d felt that I wouldn’t be able to even though I tried to put it out of my mind. … Continue reading →

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Day 3 Perspective.

Posted on October 21, 2006 by Julia Roberts

It’s 3 days post news and we’re better. Still a little shell shocked, but definitely better. It’s progress. After talking today about various items on the check list and discussing everything at length with a couple of nurses, a doctor, … Continue reading →

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Devastated.

Posted on October 18, 2006 by Julia Roberts

The answer is no. Julian is unable to donate a kidney to Gage. Enough said. All I could muster up last night were the above two lines. Here is the whole story. We are devastated to learn that Julian is … Continue reading →

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Out with the bad and in with the good.

Posted on October 17, 2006 by Julia Roberts

Gage pees a lot. He could go every 30-45 minutes if we make him. He still has a few accidents a week and is nearly always wet to some extent and he also wears a couple of pull ups a … Continue reading →

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What's the date you say?

Posted on October 17, 2006 by Julia Roberts

It’s Tuesday. I hadn’t mentioned what we’re waiting for earlier because that meant I would be acknowledging the reality of the week. The transplant team is meeting on Wednesday and on Thursday we are to hear if Julian will be … Continue reading →

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Photo Fun Friday

Posted on October 13, 2006 by Julia Roberts

I was sincerely hoping that after dialysis today that Gage would become mellow. Relaxed. And when we got home I was hoping that Quinn would be snuggly and sweet. As it turns out they are none of those things today. … Continue reading →

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Learning is an adventure with sick kids.

Posted on October 11, 2006 by Julia Roberts

Every time I talk with a doctor or nurse about Gage I learn something. Did you know that dialysis equals about 15% of what kidney function should be? So, with his own function there is a combined 25% kidney function. … Continue reading →

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When "um" becomes the most used word.

Posted on October 11, 2006 by Julia Roberts

Our local Children’s Hospital has invited Gage’s teachers and staff from his school to attend a 4 hour dialysis workshop between 10-2pm on a school day in about a week. They will cover what Gage goes through at dialysis, how … Continue reading →

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