-
Recent Posts
Recent Comments
Archives
Categories
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- Uncategorized
- What others take for granted
- Working through it.
Monthly Archives: December 2006
Lessons Learned in 2006
1. Work hard to stay connected to your spouse. It is very helpful to like the person when crisis hits. 2. Don’t forget to thank the people in your life who show up time after time when crisis hits. 3. … Continue reading
Posted in Story telling
Leave a comment
Because we're lucky that way.
I’m afraid to type this for fear something will spontaneously blow up, but we have learned we are moving to the next step with a donor. If you are the kind of people that are keeping score we have 4 … Continue reading
Posted in Gage's new kidney adventure
Leave a comment
The unthinkable.
It’s not a matter of life and death but Gage has lost Sally – what I affectionately call Ugly Orange Kitty. Sally has been through a lot with Gage. The ARPKD diagnosis, testing, treatments, surgeries, dialysis, fun, sadness. By process … Continue reading
Posted in Story telling
Leave a comment
Photo Fun Friday
It was a lovely Christmas. Of course, the kids are completely off routine, and they are a little grumpy from all the activity, including a little bug going around but all in all they have done well. A couple of … Continue reading
Posted in Friday Photo Fun
Leave a comment
Photo Fun Friday
Quinn did absolutely splendid at her annual testing. It was easy-breezy getting her to the three locations within the hospital and we were done in under 3 hours. It almost seemed like nothing. You know, compared to kidney failure, dialysis, … Continue reading
Posted in Friday Photo Fun
Leave a comment
Home and resting wildly.
We got home mid-day and Gage has a bit of cabin fever. He’s recovered I’d say; well enough to attend school for the last day before winter break. Something really nice and lovely happened during our 2-day stint at CH. … Continue reading
Posted in Gage's new kidney adventure
Leave a comment
Another sliver of news.
I should also mention that Gage had a splinter in his finger and would not let me remove it. Well, that’s not exactly true. He wouldn’t let me remove it with my hearing in tact or without sitting on him, … Continue reading
Posted in Gage's new kidney adventure
Leave a comment
New kidney old liver. And well, old kidneys.
Luke is doing great. It was a long day for Luke’s family but they are feeling much better being on this side of the day. Luke’s old kidneys took just 40 minutes to remove. They were large and hard. They … Continue reading
Posted in Gage's new kidney adventure
Leave a comment
A sister's birthday.
I know you are looking for an update on Gage’s procedure, but I have to wish a very Happy Birthday to my older sister (I’m still the youngest! Yay!) Terry. I couldn’t let the day go by without telling you … Continue reading
Posted in Story telling
Leave a comment
A long list of love.
This is a list of the most recent wave of help we’ve received from the long list of people who love us (or at least they love the kids). Thanks friends. Thanks family. We could not, and wouldn’t even want … Continue reading




