Monthly Archives: April 2007

Advocacy.

Posted on April 30, 2007 by Julia Roberts

I am in DC at the airport about to leave to go home having just spent the day telling politicians from our state our story to raise  awareness about PKD. The meetings were set up by the PKD Foundation. About … Continue reading →

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Photo Fun Friday

Posted on April 28, 2007 by Julia Roberts

I love this picture of the kids. This was on the day we were leaving the hospital to come home after Gage’s transplant and Gage and Quinn were feeling particularly silly. It was when I took this picture and they … Continue reading →

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Spoken in the mutant family household.

Posted on April 26, 2007 by Julia Roberts

We were driving today after Gage’s Transplant Clinic visit and we passed by our new pharmacy when Gage says: "I thought there would be a red barn in the middle of no where, with cattails and that if we drove … Continue reading →

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When I saw yellow.

Posted on April 24, 2007 by Julia Roberts

Gage’s favorite color is yellow. Ever since he could talk he has expressed his love of yellow. Granted, he couldn’t really pronounce it until this school year (he’d say "lellow"), and that completely drove his speech therapist crazy, because you … Continue reading →

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A note to The Village from the Donor Family.

Posted on April 24, 2007 by Julia Roberts

It is with humble appreciation that we say thank you to the Village.  Your prayers, the flowers, the food, the hospital visits, the food, the cards, the phone calls, the food, the gift certificates, the home visits, the food, the … Continue reading →

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Band-Aid Stars.

Posted on April 23, 2007 by Julia Roberts

My boy is doing great. Just last week his doctor said that if all is still going as well he’ll be able to return to school a day short of 5 weeks since transplant. That means next Monday. Gage is … Continue reading →

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Shania's new liver.

Posted on April 21, 2007 by Julia Roberts

A girl name Shania got a new liver last night. Shania has ARPKD with more complicated CHF (liver part of the disease) than Gage and Quinn. So for her, liver is the most affected right now. It’s sad that there … Continue reading →

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Friday Photo Fun

Posted on April 20, 2007 by Julia Roberts

I’d like to point out to you that it is Friday. The actual day of Friday Photo Fun. And it’s the day I am posting the photo. I realize the Internet frenzy (from Grandma and Jody) around viewing this photo … Continue reading →

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Guest Author: Donor #1

Posted on April 18, 2007 by Julia Roberts

"It." It’s been three weeks – three short weeks since I went to the hospital very early in the morning with my husband and 14 year old daughter. The weeks and months leading up to T (transplant) day were not … Continue reading →

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We don't have it bad at all.

Posted on April 17, 2007 by Julia Roberts

The tragedy at Virginia Tech has quickly removed any remnants of self pity I had for the experiences we’ve been through and will go through. Today, it is gone. Early in the diagnosis of ARPKD I used to wonder if … Continue reading →

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