Monthly Archives: September 2007

Dear Quinn (on your 6th birthday!)

Posted on September 30, 2007 by Julia Roberts

You turned 6 today and I can’t believe it. We celebrated with a Breakfast-Come-As-You-Are-Dora-Pajama Party! What fun you had! Six years ago today I was ecstatic that a girl had joined our family. I was worried about how Gage would … Continue reading →

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Friday Photo Fun – Baby Style!

Posted on September 29, 2007 by Julia Roberts

After 30 hours in the hospital (I was only there 18) that sweet baby Tessa was born. It was a long day, but longer for Dad and Mom. When I left the hospital around 2:00 am, Dad was gazing at … Continue reading →

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In honor of the 6th month kidneyversary.

Posted on September 27, 2007 by Julia Roberts

The kidney photos from transplant day. Jody and Gage both wanted photos of their kidneys. Gage wanted pictures of both the old one and the new one. I’m finally getting around to loading them up. They aren’t the clearest photos … Continue reading →

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Baby Girl Tessa!

Posted on September 26, 2007 by Julia Roberts

Tonight, friends of ours are going to the hospital to have a baby! It’s a scheduled induction because she is HUGE a little large (they think a 9+ pounder) for gestational age. I am going to have the extreme pleasure of … Continue reading →

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Spoken in the mutant family household.

Posted on September 26, 2007 by Julia Roberts

Gage: "Mommy! I made you a surprise! Just for you! It’s in your office!" Me: "Gage it’s beautiful!" (as I put on a paper clip choker with a butterfly paper clip closure) Gage: "It is a dollar." Me, handing him … Continue reading →

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Willingness.

Posted on September 25, 2007 by Julia Roberts

Raising kids with special needs isn’t for sissies. There is the possibility every single day that a new challenge relating to a special need can send your day in a different direction than you planned. There is always something to … Continue reading →

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What this parent wants.

Posted on September 23, 2007 by Julia Roberts

A person to see Gage’s qualities and what he can do and help him obtain all the academic ability that is possible with his challenges. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg … Continue reading →

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Friday Photo (Video) Fun

Posted on September 21, 2007 by Julia Roberts

This morning a photo from the Monday session with Gage taking his meds was featured on the Today Show. Here is a link. They are shown several times during the interview. Daddy was strong-arming Gage a little bit to take … Continue reading →

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Back. To P from R.

Posted on September 20, 2007 by Julia Roberts

When we ran into the doc and coordinator on Tuesday while we were getting Gage’s labs done I whispered that Gage didn’t know that the Rapamune was causing the ulcers. It would not have been a great idea to tell … Continue reading →

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Level waiting.

Posted on September 20, 2007 by Julia Roberts

One of the transplant coordinators called early this morning to tell me that Gage’s Rapamune level is low. This is not great news. We were hoping to go down on the dose, but that is now not possible. She said … Continue reading →

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