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Monthly Archives: September 2007
Oh how I love thee. And for some, compassion.
The Great Internet has brought many good people into my life. I’m so lucky to have many good people. Mostly they are parents of sick kids. Or educationally challenged kids. Or behaviorally challenged kids. These are lovely people – some … Continue reading
Posted in Story telling
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What I wish I had known.
I spoke to a few ICU nurses that are in school to become Physician Assistants about our ICU experience and it had me remembering all kinds of things I had forgotten about Gage in the hospital. I wanted to jot … Continue reading
Gage's payment.
Like I said. Gage must pay for his great kidney function. The payment comes in forms of meds, doctor visits, life that revolves around his medical needs and more. He is on the Rapamune now, which can cause mouth ulcers. … Continue reading
Posted in Gage's new kidney adventure
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Weekend and Monday in Review.
Friday – Dodge work as much as I can to get things ready for the Walk for PKD (and Run) including buying last minute supplies and prizes. Make a pile of stuff in the basement for Julian to load up. … Continue reading
Friday Photo Fun
Our afternoon helper thought I was insane to let Gage and Quinn run out in the pouring rain, but Gage asked permission and they were thrilled when I said yes and the only thing I wanted them to do was … Continue reading
Posted in Friday Photo Fun
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Spoken in the mutant family household.
Julian and I were watching the news this morning and there was a report on chemical attraction. I said something like "we still have that chemical attraction, right baby?" and about as quick as he could speak, said… "Yeah, we … Continue reading
Posted in General Family
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Gradually
Gage has started a new drug to replace Prograf. It is Rapamune. Our docs tell us that Prorgraf is great for early transplant care, but later can be harmful to the new kidney. Rapamune on the other hand isn’t so … Continue reading
Posted in Gage's new kidney adventure
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Yikes!
The PKD Foundation sponsored radio tour went well this morning. I was on the phone doing interviews for almost 4 hours. We did have a 30 minute break, which was extremely helpful SINCE I AM NOT A MORNING PERSON. Well, … Continue reading
Posted in Kidneys in general
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I remember.
I know we all know where we were and what we were doing in the morning hours of September 11, 2001. Our family was on vacation in Florida just getting moving. We were with my sister’s family (cousin Andrew was … Continue reading
Posted in Story telling
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I'm going out on tour.
That’s not entirely true. I’m staying in for the tour. The PKD Foundation has sponsored a radio tour and Jennifer from the PKD Foundation asked me to do the back-to-back interviews all morning this Wednesday by phone in target cities. … Continue reading
Posted in Kidneys in general
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