Monthly Archives: November 2007

Day 30 – My First Essay.

Posted on November 30, 2007 by Julia Roberts

My Son’s Successful Kidney Transplant and My Grief I spent a weekend away with my husband, Julian, to celebrate our wedding anniversary. We had a great time being together and we incessantly rested. We liked being free of all parental … Continue reading →

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Friday Photo Fun

Posted on November 30, 2007 by Julia Roberts

My Quinn is graduating from physical therapy! Her therapist (the lovely and talented Ms. K) sent me a note to tell me she thinks we can stop therapy before Christmas and do a check up in a few months to … Continue reading →

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Day 29 – The things we do not speak.

Posted on November 29, 2007 by Julia Roberts

As a parent to two children with a disease that requires life-saving surgery I am aware that they can die young. These thoughts most certainly shape me as a mother. As it is with most parents I know, it is … Continue reading →

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Day 28 – Special Consideration

Posted on November 28, 2007 by Julia Roberts

About a month ago I had a meeting with a bunch of people involved in Gage’s education. It was his annual IEP review. The meeting was long, came with 7 people, Julian on speaker phone and was about a week … Continue reading →

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Day 27 – Ripple effect.

Posted on November 27, 2007 by Julia Roberts

It’s no secret that Gage’s school was about as supportive as a community can be to a little boy and his family in medical crisis. They shared our fear with the impending transplant and they shared our joy over Gage’s … Continue reading →

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Happy You-Know-Whataversary.

Posted on November 27, 2007 by Julia Roberts

Jody, have you noticed that it’s been 8 months? Because it has. Today, the 27th, marks 8 months of yellow pee for the boy. It’s the small joys along with the large ones that make this journey so interesting, no? … Continue reading →

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Day 26 – Dear Transplant Team,

Posted on November 26, 2007 by Julia Roberts

I still love you (really, really love you) so don’t take this the wrong way, but… For the 2nd time in a row, I have brought my boy to the transplant floor for labs and there weren’t lab orders. Eight … Continue reading →

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Day 25 – Volunteerism

Posted on November 25, 2007 by Julia Roberts

Two months after Quinn was diagnosed with ARPKD I called the PKD Foundation to see about starting a chapter in our large city. I thought it was ridiculous that there wasn’t a chapter here for people (like me) to call … Continue reading →

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Day 24 – Photo Fun Friday, but Saturday.

Posted on November 24, 2007 by Julia Roberts

I know. I’m kind of cheating. But give me a break, beside the Q&A I haven’t been too lame in posting, right? My NABloPoMo post is really my Photo Fun Friday (I have my camera cable now!), late of course, … Continue reading →

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Day 23 – In honor of shopping.

Posted on November 23, 2007 by Julia Roberts

A long time ago I loved to go shopping the day after Thanksgiving. I loved the crowds, the sales that started at 5:00am, I loved searching for a parking space, carrying handle shopping bags precisely packed with everyone’s presents, stopping … Continue reading →

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