Monthly Archives: March 2008

See, I can handle it.

After school I took both kids to the pediatrician again. Quinn was there last Monday (allergies) and Gage was there 3 weeks ago (scalp-eating rash) and we happened to get the same doctor. I went through my sob story about … Continue reading

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The Life Cyle of a (hopefully) Simple Rash.

Gage’s head thing (the not positive culture ringworm) is worse. Over the weekend it just grew. And now instead of a patch on his head having thinning hair the size of an egg, it’s the size of a fist. And … Continue reading

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Friday Photo Fun

It was great to be around The Donor and her family last night. Gage and Quinn were actually kind of charming. Gage sat by me and talked my ear off the entire night and answered questions and was generally pretty … Continue reading

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Spoken in the mutant family household.

The scene: Picking Gage up from school in car pool. Momma: Hey sweetie! How was your day? Gage: Good, I guess. Momma: You know what day it is, right? It’s the 1 year anniversary of you getting your new kidney … Continue reading

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One Year.

It’s been a year. Already. A year since Gage got his new kidney from Jody. And as I sit in the quietness of my house while the kids and Julian are asleep, I can only think about the chance at … Continue reading

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The Misadventures of One Room

When we go to the NIH for the study, we are staying at The Children’s Inn.. By all accounts this is a lovely place for us to be for the week. People have gone to great lengths to tell us … Continue reading

Posted in Kidneys in general, Raising special needs kids, Story telling | Leave a comment

Alrighty.

Greeblemonkey (who is ridiculously funny) turned me on to what she calls a “dashboard” of sorts for news and entertainment…started by this Guy. Go here and check it out. I asked them if they could start a sub category for … Continue reading

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Sometimes there's an impulse to cry.

Gage has has about 6 “good” days at school in his homeroom. Keep in mind this mark is on a sliding scale for him, as a “good” day for him is probably a not so good day for other kids. … Continue reading

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More curious.

Regarding the brain abnormality…expressive language is usually affected. I’ve been thinking about this a lot since the doctor mentioned it to me. She told me that she’d read in our notes that at age 3 Gage was using 3 words … Continue reading

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Curious.

The doctor who runs the study the kids are going to be participants in called to say that she had looked at Gage’s MRI from age 22 months. Surprising us, she said that Gage does in fact have an abnormality … Continue reading

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