Monthly Archives: March 2008

Photo. Friday.

Posted on March 21, 2008 by Julia Roberts

I wanted to post a picture of the kids with other ARPKD kids at one of the PKD Foundation’s Conventions, but didn’t have permission, so this will have to do. This one was taken a PKD Convention. This was taken … Continue reading →

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Sadness

Posted on March 20, 2008 by Julia Roberts

Two babies born with arpkd have died recently. One was hours old. One, a day old and he died yesterday. In addition, a 13 month old boy on dialysis, doing pretty good by all accounts, died yesterday too. He’d survived … Continue reading →

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Spoken in the mutant family household.

Posted on March 19, 2008 by Julia Roberts

Julian: Okay, let’s see. Now what do we have to get done between moving (on the 28th) and the party (on the 30th)? Julia: Well, we need to get the new playroom ready; carpets cleaned, paint, get furniture moved in, … Continue reading →

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Management of the list.

Posted on March 19, 2008 by Julia Roberts

- Our phone provider screwed up and now our move is tentatively scheduled for the 28th. – Because of said phone provider I have decided we had to move the party for 6 weeks later. – This has helped my … Continue reading →

Posted in Working through it. | Leave a comment

Return me to the beach.

Posted on March 17, 2008 by Julia Roberts

A list of crazy things. – Our office move is being pushed back because someone at our phone provider didn’t bother to enter our paperwork on March 6th. – Our office move will happen approximately 2 days before we host … Continue reading →

Posted in Gage's new kidney adventure, General Family, Working through it. | Leave a comment

A week in pictures.

Posted on March 14, 2008 by Julia Roberts

As much as I am protesting it, we go home tomorrow. I can honestly say I don’t miss my life. Six days, I’ve learned, isn’t long enough to wish I were back home, but maybe I will feel different tomorrow. … Continue reading →

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That Gage.

Posted on March 13, 2008 by Julia Roberts

Reports from home tell of tales of Gage behaving badly on many levels. Things are not looking good. I hear that he is grounded from all things unrelated to school and learning (educational and piano). Should be fun going home … Continue reading →

Posted in Good behavior doesn't come cheap | Leave a comment

It's hard even the 2nd time around.

Posted on March 13, 2008 by Julia Roberts

One thing I’ve had here is time. Time to think. That’s not so at home, we’ll, first because all of those people that live there and there is always something to do. Coming back to the beach we always vacation … Continue reading →

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Rest is a beautiful thing.

Posted on March 12, 2008 by Julia Roberts

This is the screened in porch of our little house on the island. Many times a day I sit on the little porch and enjoy the view. Doing nothing. Nothing! Ah…the waste of time! I slept 17 hours out of … Continue reading →

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Don't hate me.

Posted on March 10, 2008 by Julia Roberts

Especially you moms that also need a break. I am at the beach and this is the view from the porch of the cute house I am renting with a friend. Day 1 having arrived and already walked on the … Continue reading →

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