Monthly Archives: April 2008

Out of balance.

Posted on April 30, 2008 by Julia Roberts

I’m still very out of sorts with the office move. Overall my thoughts are that it is good however, I am still having trouble working nicely showered, with no TV and no dryer in the background. I’m finding it hard … Continue reading →

Posted in General Family, Working through it. | Leave a comment

Photo Friday Fun

Posted on April 25, 2008 by Julia Roberts

Gage has had a very rough week. Well, his good weeks might be another kid’s bad weeks, so I realize there it is a matter of perspectives. He had standardized testing this week and he was moved to a new … Continue reading →

Posted in Good behavior doesn't come cheap, Raising special needs kids, What others take for granted | Leave a comment

You did it.

Posted on April 24, 2008 by Julia Roberts

HILL BRIEFS Senate Passes Genetic Nondiscrimination Bill Thu. Apr. 24, 2008 Judiciary. The Senate today passed, 95-0, a genetic nondiscrimination bill that has been languishing in Congress for over a decade. House leaders expect to take up the same bill … Continue reading →

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No Gage Left Behind.

Posted on April 24, 2008 by Julia Roberts

After my post, my friend Angela sent me this for a laugh. Dawn will especially love this, I know. And her Noah, would, because he loves him a standardized test (I’m not even kidding) but he’s homeschooled, so he doesn’t … Continue reading →

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Hundreds of Goals

Posted on April 24, 2008 by Julia Roberts

Since Gage was 18 months old he’s been in therapy. He’s been through speech, occupational, vision, aquatics, and physical therapy in addition to extra tutoring (on top of an individualized education plan with goals) for acedemics. Over the course of … Continue reading →

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Getting used to changes.

Posted on April 23, 2008 by Julia Roberts

There are many changes going on in my life right now. We now have a real office. I have to get up every morning, shower, get dressed and go into an office. I think this is mostly positive. Except when … Continue reading →

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Friday Photo Fun

Posted on April 18, 2008 by Julia Roberts

My Quinnlin. I took her out to dinner last night because she wanted waffles and bacon. We were ordering drinks and she spent a LOT of time during out dinner asking if this or that had high potassium. She’s very … Continue reading →

Posted in Friday Photo Fun, Good behavior doesn't come cheap, Quinn's new kidney adventure | Leave a comment

More than the regular chaos

Posted on April 18, 2008 by Julia Roberts

In December one of our goals was to get the company out of the house by the end of 2008. Two days before we left for the NIH we moved our offices out of the in-law suite in our home … Continue reading →

Posted in Nothing to do with kidneys, Story telling, Working through it. | Leave a comment

Political much?

Posted on April 16, 2008 by Julia Roberts

Change is the BIG BUZZ word in this presidential campaign. Here is a way you can really help change something. This is near and dear to my heart and can impact our little mutant family. I need your help, by … Continue reading →

Posted in General Family, Kidneys in general, Raising special needs kids, What others take for granted | Leave a comment

Bananas

Posted on April 15, 2008 by Julia Roberts

Last night Quinn was hungry before dinner and asked for a banana. I had to say no to her because her potassium was really high last week and I am going to try to cut out some potassium items from … Continue reading →

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