Monthly Archives: June 2008

Over soup.

Posted on June 30, 2008 by Julia Roberts

At lunch the following conversation transpired: “It feels weird for them to be gone, somewhere that isn’t with family.” “I know. Do you miss them?” “Kinda. In theory I miss them. I don’t miss doing for them.” “I do miss … Continue reading →

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Camp Safety Patrol

Posted on June 30, 2008 by Julia Roberts

When Julian was an early teenager his dad sent him to Camp Safety Patrol. His dad was a popular local neighborhood bank president and knew a lot of people – state troopers and local law enforcement among them. Some trooper … Continue reading →

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Prograf good? Check.

Posted on June 28, 2008 by Julia Roberts

Gage’s level on prograf the last two weeks has check out as okay (7 last week, 9 this week, but they were at different times of the days). I have no idea if he will need labs when he gets … Continue reading →

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Photo Fun Friday

Posted on June 27, 2008 by Julia Roberts

Quinn has finished her season because she is leaving for camp before the County Finals next week. I’m fairly certain she would not have placed in the finals but I am not fazed by the lack of swimming championship titles. … Continue reading →

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15 Months of Yellow Pee

Posted on June 27, 2008 by Julia Roberts

Gage isn’t nearly as thrilled as he was in the early days of using Jody’s kidney, but every now and again it comes up in conversation…like “Gage! Do you remember when you didn’t even have yellow pee?” No, really. Maybe … Continue reading →

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Gage's Level.

Posted on June 26, 2008 by Julia Roberts

Gage had labs Saturday because they were checking his prograf levels as a result of him being put on the drug that will hopefully stop the scalp-eating fungus that is running rampant currently. The levels were fine. Perfect in fact. … Continue reading →

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Hey, you! Yeah, you.

Posted on June 24, 2008 by Julia Roberts

You know who I am talking about . All of you staff people at the PKD Foundation…I would be talking to you. And about you. I realize I am only 2 days post Convention, but I had to say THANKS … Continue reading →

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Repro.

Posted on June 22, 2008 by Julia Roberts

For the first time in a long time I have been thinking of the ramifications of transplant on Gage and Quinn’s reproductive systems and choices because of a session called “Reproductive Issues.” There are immunosupressant and BP drugs that have … Continue reading →

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Among my people, again.

Posted on June 21, 2008 by Julia Roberts

There is so much to do here and I’ve not been blogging. Training for Chapters of the PKD Foundation. And sessions with awesome doctors talking about things I’ve heard before but never tire of hearing again, because we’re still in … Continue reading →

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I'm off.

Posted on June 18, 2008 by Julia Roberts

I’m taking a few days off to go the PKD Convention in Dallas. Somehow, someway a few of my favorite moms are all attending the conference without kids…just like me! Sadly, we’ve had to pawn the kids off on about … Continue reading →

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