-
-
Recent Posts
Recent Comments
Archives
Categories
- 365 Days of Kidneys
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Getting My Craft On.
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- Uncategorized
- What others take for granted
- Working through it.
Monthly Archives: July 2008
Distractions
Being away from home is good. Distractions like riding beach waves and afternoon pool dips and hunting for hermit crabs are super for forgetting almost all of your troubles. One trouble now is Gage. We’re so worried about him and … Continue reading
It's always time for meds.
Julian does Med Duty (as we call it in our house) probably 70% of the time. He does them that much because they are one of my least favorite things to do regarding their medical care (along with giving them … Continue reading
Rise and Fall
It is a waiting and watching game, this kidney failure thing is. Quinn had labs on Wednesday and they had to redo them on Friday because of a dangerously high potassium. Her BUN had fallen to a respectable 60 on … Continue reading
Posted in Quinn's new kidney adventure
Leave a comment
Friday Photo Fun
This is Quinn. Vacation 2003 Cute as pie and happy as can be. At age 2 she had yet to walk independently. Today she had her first long wait for them to draw blood from her left arm. And it … Continue reading
Posted in Quinn's new kidney adventure
Leave a comment
Spoken in the Mutant Family Household
I told Quinn that we had to go to the hospital for labs again in the morning. Through her tears she cried, “Why! Why! Why! I already did that, I still have the mark!” I hugged her and held her … Continue reading
Posted in Quinn's new kidney adventure
Leave a comment
How Thy Numbers Keep Thee Jumping
Good news is that Quinn’s BUN is lower. Not great lower, but low enough to push off a planned IV fluid stay at the hospital in the next two weeks. But her potassium is much to high. They are suspecting … Continue reading
Posted in Quinn's new kidney adventure
Leave a comment
The About Page is Really About Them
The PKD Foundation, today I think, sent out a blast with my blog listed, so I wanted to welcome new visitors. If you click on the ABOUT page to the right you will get our story with our kids’ PKD … Continue reading
Posted in Uncategorized
Leave a comment
Dawn's Fabulousness
Dawn over at This Woman’s Work is launching a new entity of her business for the un-bloggers interested in blogging (she does assessment and strategy and implementation). Go here, to Open Book Strategies and see what it’s about… I can … Continue reading
Posted in Story telling, Working through it.
Leave a comment
Annoying List Post
1. I had to take Quinn for labs again. When we pulled up she said, “Hey, we were here before…wait…is this where they put the needle in me?” and I told her yes and that I had already covered that … Continue reading
Hitting the Wall
Time to revamp the behavior modification plan…yet again. He’s been aggressive with Quinn (either swinging to pretend he is going to hit or actually hitting her) and it’s time to change things up. I know this because when he hits … Continue reading
