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Monthly Archives: September 2008
Those ARPKD Families, They're a Resourceful Bunch
I just learned from my ARPKD Chapter Co-coordinator that there are 61 teams across the country (world?) that are raising money and awareness at the various Walk for PKD events starting last weekend – with the bulk of them this … Continue reading
Posted in Story telling
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Still bad, but improved.
- Quinn’s numbers I guess are “improved” still off though. I haven’t seen the lab results because I was out of town. Dr. Kind called and talked with Julian who told her to call me on my cell (because I … Continue reading
Posted in Quinn's new kidney adventure
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Quinny B's numbers
We are waiting for Quinn’s results from Friday. We spoke with The Best Nephrology Nurse in the world and she said Dr. Kind needed to look them over and call us back. This only happens when there is something to … Continue reading
Posted in Quinn's new kidney adventure
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Friday Photo Fun
My Quinny! This is one of my favorite pictures of my girl. She was just over a year old and was finally sitting up on her own well and she was in a morning out program twice a week. When … Continue reading
Posted in Friday Photo Fun
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Smoke and Fire = Exciting!
Wednesday on the way home from the good doc’s office I noticed my AC wasn’t doing quite as good as it should. I assumed it was freon because it hadn’t been serviced in a while, but it was a hot … Continue reading
Posted in Story telling
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Just to recap…
Dawn sent me an email earlier to ask where in the process we were with the evaluation for Gage. I’m not suprised she is confused, because, frankly, I am confused. I’ve been going so much on Momma-Just-Get-It-Done- Instinct that I … Continue reading
Feeling the Love
“…hang in there. there must be one more pocket of strength tucked away somewhere, waiting for this (literally) rainy day.” There is a lot of love and worry coming my way from my friends and family and from the Internets … Continue reading
Posted in Story telling
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Spoken in the Mutant Family Household
Quinn is now talking about death a lot. I think it is a by product of Gage’s situation but also maybe a milestone (?). I question that because about 7 years ago I got rid of all of the baby/kiddo … Continue reading
Posted in Story telling
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Rescue
Today in play therapy Gage was himself the rescuer. He didn’t want to tell me what the scene was, he wants me to see pictures. I’d say that is good. And today, not once did he say he wanted to … Continue reading
What is up.
The dinner party was great. It was catered, so that alone made it great. But there were also some great people to hang out with, the food was delicious, the celebration was friend-worthy (it was a “Glad She Was Born” … Continue reading
