Monthly Archives: October 2008

It's either the meds or great parenting!

Posted on October 31, 2008 by Julia Roberts

Gage had an awesome week. I mean, he had a day and a half that weren’t so good, but for Gage, trust me, he had a good week. Remember the “He only tripped a deaf child” comment some years ago. … Continue reading →

Posted in Good behavior doesn't come cheap | Leave a comment

Friday Photo Fun

Posted on October 31, 2008 by Julia Roberts

2002? Quinn would have been just a year old and not walking. See? How my years and time markers just start running together? Yeah, she’s nearly bald. She was a year old. Happy Halloween! This year’s pic ought to be … Continue reading →

Posted in Friday Photo Fun | Leave a comment

Numbers

Posted on October 29, 2008 by Julia Roberts

Gage and Quinn have had over 100 medical professionals and therapists that we’ve seen (or see) regularly. Gage has had 500+ therapies since he was 18 months old. Quinn has had her labs done roughly 50 times. Gage visited the … Continue reading →

Posted in General Family, Raising special needs kids | Leave a comment

Dang it.

Posted on October 29, 2008 by Julia Roberts

I missed another 27th and the chance to tell Jody thank you. I was traveling from Chicago, and falling in and out of non-deep sleep on a flight, and then I was listening to my kids stay up way too … Continue reading →

Posted in Gage's new kidney adventure | Leave a comment

Spoken in the Mutant Family Household

Posted on October 28, 2008 by Julia Roberts

Me: “Hey! You know when we go to New York, they won’t let us off the plane until we sing The Song, right?” Quinn: “Huhhhh? What song is this?” Me: “New York, New York – you know the one…I want … Continue reading →

Posted in Story telling | Leave a comment

My Friend and her story.

Posted on October 27, 2008 by Julia Roberts

I have a friend, Jen, who is remarkable and she has a remarkable family. I met her as she was seeking support near the day the doctors said her in utero baby would die due to ARPKD and told her … Continue reading →

Posted in Raising special needs kids, Story telling | Leave a comment

Travels.

Posted on October 25, 2008 by Julia Roberts

I am traveling this weekend for the PKD Foundation’s Board of Trustees meeting and it is always good to be around the people that are taking care of PKD interests. I enjoy being on the board because I get to … Continue reading →

Posted in Story telling | Leave a comment

She listens.

Posted on October 24, 2008 by Julia Roberts

Gage’s psychairtrist and I have found a groove. Yesterday she increased the concerta after we and the teachers say that Gage is still unfocused and all over the place. Gage started it today and we should know in the next … Continue reading →

Posted in Good behavior doesn't come cheap, Raising special needs kids | Leave a comment

Friday Photo Fun

Posted on October 24, 2008 by Julia Roberts

The girl who is ignored because she is so good! The boy! He demands a lot of focus! But don’t worry, she’s well-loved (and she get’s plenty attention because she is smart and funny and cute!) and doing okay right … Continue reading →

Posted in Friday Photo Fun | Leave a comment

Peace Over Peanuts

Posted on October 23, 2008 by Julia Roberts

I leisurely picked up the kids today at school and in the hall on the way to try to speak with a teacher, one teacher stopped me to only tell me about a homework sheet in Gage’s backpack. Imagine my … Continue reading →

Posted in Good behavior doesn't come cheap, Raising special needs kids | Leave a comment