Monthly Archives: November 2008

Friday Photo Fun

Posted on November 21, 2008 by Julia Roberts

This is Gage and Quinn on the day that Gage was released from the hospital from his transplant. To say that they were happy for Gage to be breaking out of the hospital is an understatement. Gage has PKD and … Continue reading →

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A lame update with bullets.

Posted on November 21, 2008 by Julia Roberts

I forgot the EPO injection meds at the office in the fridge. They were delivered there. Another day repreive. Gage was wild after school, but then he had a great time – with good behavior – at scouts with grandpa. … Continue reading →

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I'm Twittering

Posted on November 20, 2008 by Julia Roberts

You can follow us on Twitter…http://twitter.com/juliaroberts1 especially next week when we are in New York! I will be twittering out trip as well as blogging at night with photos (note to self: must remember camera cable and battery charger). I … Continue reading →

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Sleep, Oh How I Love Thee

Posted on November 19, 2008 by Julia Roberts

Tomorrow Gage has an early appointment – 8:20 for labs and clinic visit. The appointment is at 8:20. Julian is traveling and so that means an early day for all as I have to take Quinny B. to a neighbor’s … Continue reading →

Posted in Gage's new kidney adventure, Quinn's new kidney adventure, Raising special needs kids | Leave a comment

"This isn't about you."

Posted on November 18, 2008 by Julia Roberts

A social worker a couple of years ago told me this. I had expressed some uneasiness at accepting the wish from the Make-A-Wish Foundation for Gage. I remember thinking to myself at the time that this was for really, really … Continue reading →

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The Big Apple

Posted on November 17, 2008 by Julia Roberts

Today we got our itinerary from the Make-A-Wish Foundation and plans are big for Gage and his trip! Of course, we’ll all benefit from Gage’s trip! Just some of the fun…ice skating, the empire state building, statue of liberty, natural … Continue reading →

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"She's a mess."

Posted on November 16, 2008 by Julia Roberts

Dr. Wonderful once used that to describe Quinn during a presentation/conversation with a small group of parents of kids with PKD. I was in the room and it was fine with me for Dr. W to talk about our kids; … Continue reading →

Posted in Raising special needs kids | Leave a comment

The downward spiral of kidney failure.

Posted on November 15, 2008 by Julia Roberts

Dr. Kind called tonight from home to tell me that Quinn’s labs from this week indicate the need for a couple more meds. For starter she’s going to be on EPO shots. We’ve been waiting for her numbers to drop … Continue reading →

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Friday Photo Fun

Posted on November 14, 2008 by Julia Roberts

Some time ago, before the Zoloft kicked in Gage and Quinn got on a spy kick. This was probably the first time in 3 or 4 months that Gage wanted to go outside and so I helped them with flashlights, … Continue reading →

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Way better.

Posted on November 13, 2008 by Julia Roberts

Gage had another great day!  I look forward to his class because he cracks me up!  He is a really funny guy.  I was talking with (his teacher) and she says the same thing.  He is doing so well and … Continue reading →

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