Monthly Archives: December 2008

Lessons Learned in 2008

1. No matter what you PLAN for in the lives of your sick kids, something you didn’t think COULD happen does happen. 2. Mental illness in little kids is scary. There’s no way to plan for it and no true … Continue reading

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I broke my internet explorer.

Somehow I managed to break down my connect to the WWW. I could still send and receive emails but I couldn’t go on line to do anything! No blog! No Facebook! No blog reading! I could do a few things … Continue reading

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A break I didn't know I needed.

I guess I needed a short break from the blog. I’ve been enjoying time with friends and family. We had our Christmas last this year, just yesterday, so the platters and serving bowls are just getting put back where they … Continue reading

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If you're stopping by…

If you are here by way of Quinn’s Dear Santa letter, welcome. If you want to know more about our story see the About Me page link to the right. If you have any questions about us, the effects Polycystic … Continue reading

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Spoken in the Mutant Family Household, Holiday Edition

Quinn: “What does A-lease Mommy Dodd mean? Julia: “You mean Feliz Navidad? Quinn: “No! A-lease Mommy Dodd!” ________________________________________ Quinn to Mommy coming home from work: “Why are you here?” Me: “What do you mean?” Quinn: “Go back to work! Miss … Continue reading

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Small favors.

Quinn’s mole that the transplant team required we remove prior to transplant (because it was suspicious and we had to get it off before her body was flushed with immunosuppresants) is completely benign. I had thought that with our luck, … Continue reading

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Who cares if he needs it?

Gage’s physcharist wanted to try another adhd med for Gage. The concerta he’s on, while certainly helping him focus during the day, has him up until all hours into the evening. It’s between 10-midnight when he finally settles in to … Continue reading

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Not Your Daddy's Dear Santa Letter

I cleaned out Quinn’s backpack over the weekend. It was full of papers from the past few weeks and art projects and such. Teachers were gratefully filling up backpacks around the country, decluttering their space for the New Year. Inside … Continue reading

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Update on Blankets and Such…

So far, Gage likes his weighted blanket. It’s 10 lbs total and he smiles when he gets under it. It’s not improved the amount of sleeping time – which Gage needs desperately. He’s out of school for two weeks, so … Continue reading

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The No Plan Plan

Both Drs. Kind and Wonderful called me after hours last night, a little bit shocked like we were that the team declined to send Quinn’s transplant recommendation to insurance. Dr. Kind (in town neph) didn’t understand that we were denied … Continue reading

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