Monthly Archives: December 2008

Friday Photo Fun

Posted on December 19, 2008 by Julia Roberts

This was a fun day. It was our Thanksgiving and we’d already been to the Macy’s Day Parade and this was ice skating at the Rockefeller Center. I don’t have many decent pictures of me and the kids because I … Continue reading →

Posted in Friday Photo Fun | Leave a comment

The Short End

Posted on December 17, 2008 by Julia Roberts

The transplant coordinator called to tell me that they won’t send the paperwork in to insurance for Quinn’s transplant because Quinn’s GFR went up from two weeks ago. I’m disappointed for many reasons. First and foremost is Quinn’s quality of … Continue reading →

Posted in A gripe, Quinn's new kidney adventure | Leave a comment

A day we won't ever get back.

Posted on December 16, 2008 by Julia Roberts

When the liver team set this ultrasound up for Quinn we took the first appointment they gave us. We always take the one they give us because we have to assume that is first available. I rarely, if ever, will … Continue reading →

Posted in A gripe, Quinn's new kidney adventure | Leave a comment

Spoken in the Mutant Family Household

Posted on December 16, 2008 by Julia Roberts

Quinn (on the way to the hospital to get labs): “It is a baby hospital stupid kids!” Me: “What does that even mean?” Quinn: “It means the hospital is baby stupid!” Me: “Does that mean you think the hospital is … Continue reading →

Posted in Story telling | Leave a comment

Routine

Posted on December 15, 2008 by Julia Roberts

This week… Today I had to work, even though I wanted to putz around the house, but I did go into the office. And then I had to take Gage to his play therapy appointment, where we got to discuss … Continue reading →

Posted in Gage's new kidney adventure, Good behavior doesn't come cheap, Quinn's new kidney adventure | Leave a comment

Numbers

Posted on December 15, 2008 by Julia Roberts

For the 2nd time in a month Gage’s labs were elevated. His creatinine has been a steady .7 and now it’s .9. This worries me. I’m sure we’ll have repeats in the next week. Dang. I need some good news … Continue reading →

Posted in A gripe, Gage's new kidney adventure | Leave a comment

Reputation

Posted on December 15, 2008 by Julia Roberts

I’m the first one to say that Gage is a challenge to manage. He’s easily distractable, he’s impulsive, he likes to be a clown and he likes to play tricks on people (mixed with the impulsivity can be, um, a … Continue reading →

Posted in Good behavior doesn't come cheap | Leave a comment

Bejeweled Patient & Box O' Love

Posted on December 12, 2008 by Julia Roberts

Yesterday Quinn got a big box from Dawn shipped from Ohio. A while ago Dawn spread the word on her blog and twitter that Quinn was about to get her ears pierced and she wrote this great post about my … Continue reading →

Posted in General Family, Kidneys in general, Quinn's new kidney adventure, Story telling, Uncategorized | Leave a comment

Friday Photo Fun

Posted on December 12, 2008 by Julia Roberts

This is a cute picture isn’t it? My friend Susan took it when we were on Liberty Island. Gage was, well, himself. He was walking ahead, taking it all in. He was rather quiet actually. I think he was a … Continue reading →

Posted in Friday Photo Fun | Leave a comment

A little hug in my inbox.

Posted on December 12, 2008 by Julia Roberts

Hi Julia, Thank you for choosing an Original Bean Blanket.  Your blanket is scheduled to arrive on 12/17 via UPS. Your satisfaction is our highest priority.  Please let us know how you like it. Hugs, Happiness & Happy Holidays Keith … Continue reading →

Posted in Good behavior doesn't come cheap, Raising special needs kids | Leave a comment