Monthly Archives: January 2009

Answer me this…

Posted on January 31, 2009 by Julia Roberts

- Why doesn’t the kid clothing industry make big kids clothes with elastic? Not all kids (both of mine) can do buttons and snaps! – Why does Gage insist on huge card board boxes in his closet while pulling everything … Continue reading →

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Friday Photo Fun

Posted on January 30, 2009 by Julia Roberts

Sometimes the kids crack me up. Granted this was last April, but still. He’s made me laugh a few more times since then, but this picture shows Gage at his purest form. Post Footer automatically generated by Add Post Footer … Continue reading →

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Government Love

Posted on January 28, 2009 by Julia Roberts

As I navigate new territory in government services for an adult family member with special needs I am awestruck by their helpfulness. I like to tell Julian that it must be Obama – that he is so good and wonderful … Continue reading →

Posted in Nothing to do with kidneys, Raising special needs kids | Leave a comment

Trauma Tuesdays

Posted on January 27, 2009 by Julia Roberts

Excerpt from Trauma Through a Child’s Eyes (By Peter A. Levine and Maggie Kline) reprinted with permission from publisher. Signs and Symptoms of Trauma in Children Other symptoms of constriction that you might observe in your child are: a stiff … Continue reading →

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Oh, let me count the ways.

Posted on January 27, 2009 by Julia Roberts

It’s the 22nd month kidneyversary today and there are so many things I am thankful for that came with the new kidney from Jody. I can’t believe it’s been nearly two years. Two! Two years of yellow pee, good labs … Continue reading →

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A highlight in the dark tunnel.

Posted on January 26, 2009 by Julia Roberts

My BFF is moving here (she used to live here) from the other side of the country! I know! I’m crazy happy about it and can’t wait to see her coming off the plane. Home. Finally. She says now, she’ll … Continue reading →

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Friday Photo Fun

Posted on January 23, 2009 by Julia Roberts

Quinn in skates, in NY! Being in NY was great. Just had to focus on the kids and having fun. It’s a little crazy right now in our world, but at least we have NY to look back on! Post … Continue reading →

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The Elusive Transplant

Posted on January 22, 2009 by Julia Roberts

For a parent with a kid (or two!) with crappy kidneys there is the always looming “when will they need a transplant” question. As soon as we hear the diagnosis and prognosis we ask. We ask our doctors to look … Continue reading →

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At least there is that.

Posted on January 20, 2009 by Julia Roberts

BCBS gave me approval to get the two meds Gage needs (tomorrow) for another month. That gives me plenty of time to work out yet, another way to obtain drugs in the every-changing world of raising kids with special needs. … Continue reading →

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Help me, BCBS

Posted on January 20, 2009 by Julia Roberts

Yesterday, during a National Holiday, our pharmacy (one of two in the city that handles these type of meds) called to tell us that Gage’s Cellcept and Prograf couldn’t be approved because our insurance company – BCBS – is requiring … Continue reading →

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