Monthly Archives: March 2009

Trauma Tuesdays

Posted on March 17, 2009 by Julia Roberts

For today I couldn’t look at the book and read a chapter and decide what to post. I’d hit the limit of what I could read from the book this week. So I didn’t read any more this week. I … Continue reading →

Posted in Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Leave a comment

Spoken in the Mutant Family Household

Posted on March 17, 2009 by Julia Roberts

Me: Quinn, we have to do your shot shortly. Quinn: Tomorrow! Tomorrow! Quinn, shrieking: TOMORROW! Me: We have to do it honey…it makes you feel better. Quinn: NO! I don’t want it tonight, tomorrow or never! I do not want … Continue reading →

Posted in A gripe, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Leave a comment

Seen on a Wall

Posted on March 17, 2009 by Julia Roberts

Broken by circumstance But not in spirit You have the choice to be whole Making your way in a world Powered by insensitive hearts And minds closed to the possibilities of your unique greatness You prevail to show your true … Continue reading →

Posted in Raising special needs kids, Story telling | Leave a comment

They jump down with me.

Posted on March 17, 2009 by Julia Roberts

From the West Wing after Josh had an emergency psych meeting because of PTSD episode after he was shot during an assassination attempt… Leo: How’d it go? Josh: He thinks I may have an eating disorder and a fear of … Continue reading →

Posted in Nothing to do with kidneys, Story telling | Leave a comment

Worried about Bennett

Posted on March 16, 2009 by Julia Roberts

There is another little boy with ARPKD in crisis. Along with babies dying of ARPKD, there are those living difficult lives with it…and Bennett is one of them. Three years ago, right before his father, Dean, was going to give … Continue reading →

Posted in Story telling, What others take for granted | Leave a comment

Friday Photo Fun

Posted on March 13, 2009 by Julia Roberts

Gage took this picture in NY (I know, stating the obvious, right?) when we were there for his Make-A-Wish trip. The boy always has his own unique perspective about everything. I do love this picture of Gage. My non-smiling, semi … Continue reading →

Posted in Friday Photo Fun | Leave a comment

My John Carter

Posted on March 13, 2009 by Julia Roberts

Really? On the 4th episode to the end of the series of ER, My John Carter gets a kidney? It seems when there are impending – and don’t think it’s lost on me that this is somewhat of a stupid … Continue reading →

Posted in Story telling | Leave a comment

Trauma Tuesdays (on Wednesday)

Posted on March 11, 2009 by Julia Roberts

Excerpt from Trauma Through a Child’s Eyes (By Peter A. Levine and Maggie Kline) reprinted with permission from publisher. “Daddy, daddy, let it go, let it go! Please don’t kill it! Let it go!” These are the terrified screams uttered … Continue reading →

Posted in Gage's new kidney adventure, Good behavior doesn't come cheap, NaBloPoMo - A post a day!, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Leave a comment

Spoken in the Mutant Family Household

Posted on March 9, 2009 by Julia Roberts

Quinn: “I want a banana.” Me: “But I’m already washing and cutting some tasty strawberries for you!” Quinn: “I want a banana! I don’t care about my potassium!” Me: “I know you don’t care about it, but we’ve not gotten … Continue reading →

Posted in Story telling | Leave a comment

Full Circle

Posted on March 7, 2009 by Julia Roberts

A while back I brought Quinn to get labs. It was early (8am) and interrupted the school morning, but we stopped to get biscuits so all was right with the world (because Quinn didn’t want to miss school). When I … Continue reading →

Posted in Story telling | Leave a comment