Monthly Archives: April 2009

Spoken in the Mutant Family Household, Extended Family Edition

Posted on April 30, 2009 by Julia Roberts

QPD#1, Cheryl: “I never knew how much I peed until I had to collect it.” Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via Reddit Share with … Continue reading →

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Completely Private

Posted on April 29, 2009 by Julia Roberts

At the urging of myself and her husband, Quinn’s Potential Donor #1 (QPD#1), is letting me blog about her urine. She was very reluctant (“Absolutely NOT!” she said) to let me blog it but then she didn’t get the jug … Continue reading →

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Baby Quinn

Posted on April 26, 2009 by Julia Roberts

  The past two weekends I have been telling our PKD story because I’ve met some new people. Last week it was Walk for PKD coordinators and this weekend it was with new board members. I have to say…still over … Continue reading →

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Friday Photo Fun

Posted on April 24, 2009 by Julia Roberts

It’s not a very clear picture of Gage (Digital Camera v1.0, circa 2001) but it sure is cute. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via … Continue reading →

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Trauma Tuesdays, Interrupted, Obviously

Posted on April 22, 2009 by Julia Roberts

I have to take another break from TT, because well, I’ve been parenting and working and advocating all over the place. Client meetings, cleaning after renovation, laundry, and newly eating vegetarian (guess I’m following suit with the kids), and spending … Continue reading →

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Alone.

Posted on April 18, 2009 by Julia Roberts

I’m at Walk for PKD training in Kansas City while my friends and family fend for themselves with the kids. And I’m here with some 50ish people doing the same thing – learning how to plan and execute a flawless … Continue reading →

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Spoken in the Mutant Family Household, Worldly Education Edition

Posted on April 18, 2009 by Julia Roberts

In the car during a family outing, we’re at a stop light, looking out the window and see someone walking by: Quinn: “Wow, that girl with her belly!” Me: “Yes, that is wow, but that’s not a girl.” Gage, stretching … Continue reading →

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Friday Photo Fun

Posted on April 17, 2009 by Julia Roberts

These pictures of Gage on dialysis remind me of just how much we’ve been through. How much Gage has been through. Just over two years ago – a mere 4 days before Gage’s kidney transplant – Dan Larson, PKD Foundation … Continue reading →

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Schedule Max

Posted on April 17, 2009 by Julia Roberts

I have a post for Trauma Tuesdays, but I have to cut what I am copying from the book because the chapter I am covering is about healing trauma and the story/example is long, long. It’s good though and relates … Continue reading →

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Because we're all about the kidneys.

Posted on April 15, 2009 by Julia Roberts

A couple of weeks ago I had a little kidney stone attack. My very attractive urologist  spoke of how “we” were going to wait a little bit but that he was pretty sure it wouldn’t go out on its own … Continue reading →

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