Monthly Archives: July 2009

Friday Photo Fun, when Jody was just a friend.

Posted on July 31, 2009 by Julia Roberts

Before any of us knew Jody would give Gage a kidney she kind of liked us. Well, she really liked the kids. But we came with them so we were kind of a package deal. (I’m posting this in honor … Continue reading →

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Kenny the Kidney

Posted on July 30, 2009 by Julia Roberts

A fellow PKD Foundation Board of Trustees member…and my friend, Bill. He’s as passionate about fighting PKD as he is about his wife, Victoria and the impending birth of his new baby, which is saying something. And now, he’s Kenny. … Continue reading →

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Month 28

Posted on July 27, 2009 by Julia Roberts

Jody, Twenty-eight months and we’re still over here peeing yellow pee and whatnot. Your kidney, which we still adore, by the way, is still kicking. Because if it weren’t doing what it needed to do right now, I would completely … Continue reading →

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Normal means what exactly?

Posted on July 27, 2009 by Julia Roberts

Over the years as I’ve been raising the kids I’ve heard people give multitudes of advice. I’m not talking about the mom-to-mom advice about diapers, co-sleeping, tummy aches or fevers, because as moms, don’t we all need that? I’m talking … Continue reading →

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Friday Photo Fun

Posted on July 24, 2009 by Julia Roberts

This is about as happy as Gage can be right now. He’d found the grasshopper-not-jumpy-thirsty-friend and carried it around the pool one night (he then cared for it for 3 days then released it on his own, still alive I … Continue reading →

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Spoken in the Mutant Family Household, Summer Edition

Posted on July 23, 2009 by Julia Roberts

Noticing bump on Julian’s head, Gage says: “What? Did you go bike riding again?” ————– Julian, finding and giving Sally (Gage’s stuffed cat) to worried Gage Gage: “I guess it didn’t matter to you that Sally was lonely because you … Continue reading →

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The Photo Proof of Sadness

Posted on July 21, 2009 by Julia Roberts

I’ve been printing out and organizing pictures and mementos for scrapbooking over the last week. I’d neglected this whole thing since Gage’s transplant, so I am about 2 years behind. I’d put it off because the last two years has … Continue reading →

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Camp Debriefing

Posted on July 19, 2009 by Julia Roberts

At 9:30 we arrived at camp to pick the kids up after six days of relaxation and reflection missing them. Quinn was excited to see us and jumped off the bus to hug me. Gage was his usual self, not … Continue reading →

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Friday Photo Fun

Posted on July 17, 2009 by Julia Roberts

Quinn and Gage left for camp on Sunday. Gage was indifferent, twice saying we were making him go but that he didn’t want to. Quinn was nervous (again) but was glad to know that she might see Sarah. Last year … Continue reading →

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My complicated Gage.

Posted on July 16, 2009 by Julia Roberts

Regarding Gage from a mental health professional: “At some point how he is – this shut down person – will become a part of his personality permanently.” -  paraphrased Besides my sad child wanting to die, I’d have to say … Continue reading →

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