Monthly Archives: July 2009

Kidneys in September?

Posted on July 15, 2009 by Julia Roberts

We are looking at a particular date for Quinn and Cheryl’s transplant. At this point I would ask that you not get your hopes up too high because well, that’s what we are doing and you should follow our lead … Continue reading →

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Identity

Posted on July 14, 2009 by Julia Roberts

I saw the movie “My Sister’s Keeper” (I know, I am not well, purposely seeing a movie about a girl in kidney failure) yesterday (kids at camp!) and there was line that struck a cord with me about parenting a … Continue reading →

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A sad time.

Posted on July 13, 2009 by Julia Roberts

Tonight a teacher in our school community died peacefully with her loved ones surrounding her. Pneumonia brought on respiratory distress syndrome and she never recovered. She left a young family and a lovely husband. She was a vivacious, happy 36 … Continue reading →

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Friday Photo Fun

Posted on July 10, 2009 by Julia Roberts

We’re talking actual transplant dates with the actual surgery team for the actual girl. The actual girl, circa 2002 Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share … Continue reading →

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Let's Speak to Quinn's Quality of Life.

Posted on July 10, 2009 by Julia Roberts

Quinn is having a difficult time. There is never a minute in the day that I wonder if advocating for her transplant sooner rather than later was the right decision. I will never be swayed from the belief that had … Continue reading →

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A Trendsetter in Paired Donation

Posted on July 9, 2009 by Julia Roberts

I’ve written before about a special little boy named Bennett. His parents, Kristin and Dean, are pretty special too. Bennett has survived a grim diagnosis of ARPKD before birth and defied the odds. He’s battled back from death many times. … Continue reading →

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Some of Gage's Story

Posted on July 8, 2009 by Julia Roberts

On a particularly hard day for Gage I asked him a lot of questions about how he felt. “Are you mad?” “Are you sad?” “Why are you mad?” “Who made you so mad?” “What made you so angry today?” I … Continue reading →

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Teachers Make the World Go Around

Posted on July 7, 2009 by Julia Roberts

Dear Teachers, Parapros, Administration & Staff, I just wanted to thank you for all you did this year to help Gage and Quinn. You have my heartfelt gratitude for the positive approach you all had with them and with us. … Continue reading →

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The Moment We Found Out

Posted on July 1, 2009 by Julia Roberts

The liver nurse called for the liver doc and said the doc cleared Quinn for transplant. She’s going to speak with the kidney team tomorrow (I know! So many teams!) and then we will work on schedules with our awesome … Continue reading →

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I Play a Doctor in Real Life

Posted on July 1, 2009 by Julia Roberts

I’m no doctor but I’ve just compared last round of Quinn’s labs with this round and I’m guessing since the three numbers no longer have a HIGH and an ALERT noted carefully that the liver doc might release us to … Continue reading →

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