-
Recent Posts
Recent Comments
Archives
Categories
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- Uncategorized
- What others take for granted
- Working through it.
Monthly Archives: August 2009
Still Walking on Eggshells
Sometime in the last two weeks we noticed Gage was lighter. Brighter. He wasn’t his old self, but we saw glimmers of the old Gage. Glimmers of the boy who endlessly smiled, explored and climbed trees. The boy who played … Continue reading
Friday Photo Fun, Smiles: Circa 2002
We hope, ever so slightly, that our old Gage is returning to all his glory. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via Reddit Share with … Continue reading
Posted in Friday Photo Fun
Leave a comment
Turning a Corner Around a Very Long Block
For the last 18+ months Gage was in a downward spiral, as we all were being in the same family with him. We’ve been in chaos with him trying to figure out how best to help him. Therapy. Drugs. Walking … Continue reading
Posted in Uncategorized
Leave a comment
Month 29 of a transplanted kidney.
We are marking month 29 of Jody’s kidney donation to my little, crazy, challenging, curly-headed, funny boy. It seems that his spirit might be lining up with his happy kidney. The kidney has found a home in Gage for 2 … Continue reading
Posted in Uncategorized
Leave a comment
Just $20 to Help Fulfill Our Mission
I know these are some tough times. Believe me, I get it. Business is slow and we’re cutting our expenses where we can as many people are. That’s one of the reasons I’m reaching out to more people to fulfill … Continue reading
Spoken in the Mutant Family Household
Julian: “Quinn, get up. Get up now.” Quinnlin: “No.” And to all requests: “No” “No” “No” Julian: “If you say no one more time, just ONE more time, you will not be going to M’s house after school.” 10 minutes … Continue reading
Posted in Story telling
Leave a comment
Current Happenings & Observations
- There is nothing like a child’s transplant on the books to get mom into checking things off her own health care list…today mammogram (girls are just fine, thanks) and eye appointment (6 months late), teeth cleaning in the next … Continue reading
What Gage's Hospital Stay Gave Me
Gage’s hospital stay wasn’t horrible. He basically felt fine. The last time we were there was his kidney biopsy. It wasn’t a great experience…they located the kidney on ultrasound, the doc turned his back, someone lowered the top of the … Continue reading
Infection Inspection and More.
Upon inspection this morning, the bite/staph area looks much better. Three! No, Four! Doctors declared it improved and said things like, “Treatment is working!” and “Don’t know what kind yet!” and “We’ll just keep doing more of the same!” So … Continue reading
Diary of an Infection, Friday Photo (Fun, it is Not!)
Squeamish Advisory Alert Friday, August 14 – Around 4pm Gage points out a bug/spider/something bite that is irritated. It’s about an inch and a half to two inches around, has a clear center point (white headish). I call the ped … Continue reading




