Monthly Archives: August 2009

Living a few hours at a time.

For some reason I have a lot going on right now. Client is in town tomorrow during the day, spider bite management, kidney stone management, Walk for PKD work, regular (hopefully paid) work, Quinn’s pre-transplant schedule, bathroom quick fix remodel, … Continue reading

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Writing When Sad

A New Baby Our lives change In a moment We are scared How can this be? Death? I pray for healing Settle for alive In clarity I see hope Intertwined with fear Always Suspension Between certainty and uncertainty Difficult balance … Continue reading

Posted in Raising special needs kids, Uncategorized, What others take for granted, Working through it. | Leave a comment

Almost Made It

We were THISCLOSE to making it the entire week without a call from school. As it turns out, just about an hour and a half until dismissal we got a call to tell us that Gage had shut down. Only … Continue reading

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Friday Photo Fun, Smiling Edition

Gage has had a pretty decent week – I mean for Gage. I spoke to his teacher about a couple of things last night and she wasn’t sure it was a good week, but given what she told me I’d … Continue reading

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Some People

I realize that a lot of different kinds of people have to make up the world to make it interesting. To make it work. I really do. But I seriously do not get some people who are always in an … Continue reading

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My Peeps, They Know Stuff

So, to sum it up for myself is a great list of items that I could get for Gage to keep his hand busy during school are the following… Pipe cleaners Small board with screws Teach him to finger knit … Continue reading

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Suggestions Wanted

Gage’s anxiety is at an all-time high apparently. One of his teachers said he broke a pair of scissors and he pulled out a spiral wire out of a new notebook. He can’t help himself. It’s either the notebook wire … Continue reading

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First Hope

The first day of school we are always hopeful. We’re hopeful Gage won’t need serious intervention with behavior and increased need for support through Special Ed. We’re hopeful that he will develop friendships. We’re hopeful it won’t be as challenging … Continue reading

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Listing Some Progress

Another listed update but there are some items that have moved to the in progress column. Too tired to write with any real thoughtful entry. – Good progress on something related to the nephew. – Bad that I have also … Continue reading

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Friday Photo Fun

I had to take some pictures of Quinn for the back of a holiday card (the PKD Foundation is using cards colored by Gage and Quinn on their holiday cards this year) and she was a very willing model. With … Continue reading

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