Monthly Archives: October 2009

Mental Notes

Posted on October 22, 2009 by Julia Roberts

It’s was a rough couple of days. Rough, rough. I can’t even go through it all now because then I would have to RELIVE IT. Gage had a better day Wednesday. I guess compared to Tuesday and especially Monday, it … Continue reading →

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Spoken in the Mutant Family Household, Reality Edition

Posted on October 22, 2009 by Julia Roberts

Julian: “Well, good night. (sigh) I love you.” Julia: “Me too. I like to say don’t worry, it can’t get worse, but then that would be a lie. Cause it can and often does.” Post Footer automatically generated by Add … Continue reading →

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Heads are spinning.

Posted on October 21, 2009 by Julia Roberts

Mostly us parents and a few teachers, a counselor, maybe a doc or two as well. Gage’s current state of mind is well, seriously dark. We’ve had a bump in the wrong direction and we are mustering up any energy … Continue reading →

Posted in Gage's new kidney adventure, Good behavior doesn't come cheap, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Leave a comment

Relentless, I tell you.

Posted on October 19, 2009 by Julia Roberts

This will not be a long post. Because I am exhausted from hiding ropes and belts from my son, who had to leave school today for behavior. He was completely wide-eyed, not mentally well and we had him home by … Continue reading →

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Is the 2nd time around easier? #pkdtransplant

Posted on October 16, 2009 by Julia Roberts

I’ve started this post something like 88 times. Before the transplant, within a day of the transplant (#2) and after the transplant. I wasn’t able to do it. People wanted to believe it was easier. And in some ways I … Continue reading →

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Homeschooling for Dawn

Posted on October 14, 2009 by Julia Roberts

Heard back from all the powers that be and the start date of Quinnlin’s homebound was misunderstood. But we’re all good now (head will not explode). Quinnlin is very excited to be hosting a teacher tomorrow for a brief hello. … Continue reading →

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Fame will have to wait.

Posted on October 14, 2009 by Julia Roberts

The Today Show just bumped us to next week. We’re confident they will still run it, and the producer is working on the date but we do not know at this time. PKD awareness and our fame will have to … Continue reading →

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The Post-Transplant Crash

Posted on October 14, 2009 by Julia Roberts

When it happened this time, I wasn’t all that suprised. I mean, I’ve done this before, right? Like with our son and his kidney donor, I’ve sent our daughter and our friend away into operating rooms to give and to … Continue reading →

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Public Service Annoucement

Posted on October 12, 2009 by Julia Roberts

Several months ago someone contacted me telling me that they wanted to send the kids a book about a dog that had to have a kidney transplant. The dog’s name is Rudy. The book is Rudy Gets a Transplant. As … Continue reading →

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Oh, How You Help Me

Posted on October 12, 2009 by Julia Roberts

When we left the hospital with Quinnlin I was reeling from the transplant (No. 2) experience. I was high on life (literally) and I was agitated because of the discharge process. It was probably a span of 5 hours that … Continue reading →

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