Monthly Archives: November 2009

Under-slept

Posted on November 30, 2009 by Julia Roberts

Gage didn’t get much sleep last night. When I went to bed at 1:00 he was still up. He just couldn’t settle in and so when he is awake, one of us has to be awake (he takes apart things … Continue reading →

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Exposure for PKD.

Posted on November 29, 2009 by Julia Roberts

I woke this morning to a couple of emails from friends, letting me know that Quinn’s story had found it’s way to the AOL page via this news source. This story (encompassing the entire journey) has links to the Today … Continue reading →

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Two Straight

Posted on November 29, 2009 by Julia Roberts

Cheryl, Two months already? Well, I’m just saying that because that is what people say, but really, it feels every bit of two months. Your kidney is working fabulously. It’s a persnickity thing though – really likes water. Thank goodness … Continue reading →

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The Good Things About Him

Posted on November 28, 2009 by Julia Roberts

Sometimes when I am so focused on Gage being in all his Gageness with behavior plans and school monitoring and appointments from psychology to psychiatrists mixed in with some do-it-yourself parenting/kid analysis books it’s hard to remember there are some … Continue reading →

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House Full of Thanks

Posted on November 27, 2009 by Julia Roberts

Jody…Jody! Thirty-two months today? Just over 2 1/2 years ago our families embarked on a kidney transplant for our boy. I didn’t know what it would feel like to be 2 1/2 years out, after our other child’s transplant. And … Continue reading →

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Thanksgiving, 2008

Posted on November 26, 2009 by Julia Roberts

Looking back at a trip for a little boy who’d survived near death from lack of kidney function, dialysis, infections, a mysteriously bad surgery, a miraculous kidney transplant, debilitating depression and suicidal thoughts. I’m thankful for many things, but today … Continue reading →

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Spoken in the Mutant Family Household, Back at You Edition

Posted on November 25, 2009 by Julia Roberts

The scene: Quinn is brushing her teeth, Gage is told to go brush teeth and does something like looks at Quinn or sticks out his tongue or he waves his hand in front of her face. She screams. Julian: “Quinn … Continue reading →

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Every Move

Posted on November 24, 2009 by Julia Roberts

It’s most apparent during a conference that includes 3 of Gage’s teachers, us, and a psychologist (behaviorist) that we paid to be there, that Gage is watched. He is watched very closely. I’d venture to say that he is the … Continue reading →

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Public Service Edition, Got a Girl?

Posted on November 23, 2009 by Julia Roberts

Get her this. Well, actually, if it weren’t so pink I bet Gage would make some. He was very intrigued. Really. The Gourmet Girl Candy Jewel Factory. Quinn had seen this on TV and been begging for it for a … Continue reading →

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The Girl's Party

Posted on November 22, 2009 by Julia Roberts

This is how it went down. I shopped yesterday when Quinn was at a friend’s house for the afternoon (thanks Sue and Jessie!) I realized that the cute colorable tote bags I wanted for the girls was not available (crap!) … Continue reading →

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