Monthly Archives: December 2009

Dead words.

Posted on December 11, 2009 by Julia Roberts

Last night I was joking with the kids about their Santa picture. To Gage I said, “One day, a long time from now, I am going to do a video of all of these pictures where you have silly faces … Continue reading →

Posted in Gage's new kidney adventure, Good behavior doesn't come cheap, Raising special needs kids | Leave a comment

Annoying Things Today

Posted on December 8, 2009 by Julia Roberts

Most days I can suck it up and get through it but today for some reason many things related to caring for Gage and Quinn are annoying me greatly. It’s the stuff that is connected to them being sick kids. … Continue reading →

Posted in A gripe, Gage's new kidney adventure, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Leave a comment

Quinn's Media Story

Posted on December 7, 2009 by Julia Roberts

(give videos a second to upload) PKD and the PKD Foundation has had a lot of press because of Quinn’s story.  We’re delighted about that. Here’s how it all went down. Last December Quinn wrote this Dear Santa letter at … Continue reading →

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A Bust.

Posted on December 6, 2009 by Julia Roberts

The party was kind of a bust. There wasn’t one room where all the families could congregate and that hurt the flow and so we left and we went to a play center in the park and the kids had … Continue reading →

Posted in Good behavior doesn't come cheap | Leave a comment

Friday Photo Fun, A Teaching Moment

Posted on December 4, 2009 by Julia Roberts

Let this be a lesson from Quinnlin. Post-Transplant, Pre-Bath Post-Transplant, Post-IV Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via Reddit Share with Stumblers Tweet about it … Continue reading →

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The Perks

Posted on December 4, 2009 by Julia Roberts

Saturday we get to take the kids to a holiday party for kids who’ve received organ transplants through Children’s Healthcare of Atlanta. This year Quinn gets to be an “invited” guest instead of a guest of the “invited” Gage. I’m … Continue reading →

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The Last Time (This Year Anyway)

Posted on December 2, 2009 by Julia Roberts

We are wrapping up the Walk for PKD in Atlanta. We’re so excited that is was a successful event with just two comments that were negative. They were from the same family. They are a non-issue and in no way … Continue reading →

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