Monthly Archives: January 2010

The Anatomy of Swinging

Posted on January 18, 2010 by Julia Roberts

You start physical therapy at age 4 months of age. A therapist comes twice a week to your home to help you build your muscles to sit, crawl, walk, run and jump. You also see an OT therapist to build … Continue reading →

What Kidney Function Means to Her

Posted on January 16, 2010 by Julia Roberts

Quinn has always known she had “bad kidneys.” Ever since ever we’ve been talking about how one day she’d need a kidney transplant, how she has to take a lot of medicine and how little kidney function would/does impact her … Continue reading →

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Friday Photo Fun

Posted on January 15, 2010 by Julia Roberts

Gage, oh Gage. You perplex me and amuse me. At the same time. You don’t go with the flow, always fighting against it. Demons live in you from your experiences, your mind boggling experiences that saved your life. Always a … Continue reading →

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Normalcy in Crisis

Posted on January 14, 2010 by Julia Roberts

Gage ended up going to the hospital last night for “inside chest pains” that he’d never experienced. We thought it might be indigestion and were hoping to let it pass at home, but Gage was nearly hysterical, begging to go … Continue reading →

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The Life of a Child on Dialysis

Posted on January 9, 2010 by Julia Roberts

Note to parents with kids with failing kidneys: Do not continue reading if you are not having a strong parental day (Really, leave this site now). And go visit or Awkward Family Photos or Go Fug Yourself. It’s no secret … Continue reading →

Posted in A gripe, Gage's new kidney adventure, Raising special needs kids, Story telling, What others take for granted | Leave a comment

Spoken in the Mutant Family Household, Beach Talk Edition

Posted on January 7, 2010 by Julia Roberts

On the way down to the beach for vacation Quinn, WHO IS EIGHT, says: “I wish I could go to the beach by myself for some ALONE time.” ——- Gage informed me that he and his cousin say goodbye by … Continue reading →

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List to Remember

Posted on January 4, 2010 by Julia Roberts

Great things about our family time (for the record)at the beach include… – Some 20+ times of playing at the beach. Not all were successful trips, but the majority were. Gage was, for nearly every trip, a nice brother to … Continue reading →

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Just showing up.

Posted on January 4, 2010 by Julia Roberts

There isn’t much I can do right now to ease Gage’s pain. I can see it on his face and in his actions; he is hurting. We are doing everything we know to do – love, therapy, psychiatry/meds, behavior intervention, … Continue reading →

Posted in Good behavior doesn't come cheap, Raising special needs kids | Leave a comment

Gage is in Full Swing Something

Posted on January 3, 2010 by Julia Roberts

Gage is having a hard day. He had a hard night last night, too, but we were able to bring him back from it…today is a much harder time. Because sometimes we aren’t sure of the trigger (it’s usually something … Continue reading →

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Goodbye, Our Beach.

Posted on January 2, 2010 by Julia Roberts

Goodbye, our beach, how we’ll miss you. We’ll miss sleeping late and beach walks. And bike rides and dogs on the beach. Shell searching and assessment. We’ll miss the time with no doctors appointments and homework. We’ll miss the waves … Continue reading →