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Monthly Archives: September 2010
A simple (un)plan.
A few weeks ago Dawn followed up on an interesting lead about an HBO documentary and it grew into something and then before we knew it we had AMC involved by donating the theater for a pre-screening of MONICA & … Continue reading
Posted in Plugging SfSN site!, Working through it.
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One Year of Kidney Function for a Girl
The Beginning of Kidney Failure We knew what would happen to Quinnlin. We knew she would start to decline quickly when it started and we knew what that meant. She’d be tired, she’d be itchy, she’d stop eating and growing. … Continue reading
Posted in Quinn's new kidney adventure
5 Comments
You're Nine and Alive
Dear Quinnlin, Happy Birthday! Just 9 (long) years ago you came into my life with huge eyes and a serious stare, not many wisps of hair and long fingers and monkey toes that curled inward towards the bottom of your … Continue reading
Posted in Quinn's new kidney adventure
3 Comments
Friday Photo Fun
This is what appropriate mental health treatment looks like in pictures. Before: 1 year, 3 months ago After, Labor Day 2010 Now, he smiles. He eats, smiles, laughs and is engaged. He hikes. Poses for pictures, happily even. He collects … Continue reading
Posted in Friday Photo Fun
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A boy and some words.
Since Gage flew into a vast, empty pit of despair over two years ago he hasn’t spoken up much. Well that’s not entirely true, he would only speak up enough to say he wanted to die and only enough to … Continue reading
A Mother Like This
Thursday night I was playing a board game with the kids when Gage mentioned his stomach hurt. He and Quinnlin often mention their aches and pains, because we have that type of relationship. They mention anything remotely connected to their … Continue reading
Posted in Gage's new kidney adventure
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Sliding Scale Progress
I was talking to Dawn earlier today about Gage’s progress and I kind of had to admit that he is doing well. Although I know it is not best to put this out to the universe, but yet, SHE STILL … Continue reading
Friday Photo Fun, Remembering
Back when my son was happy. After diagnosis, before symptoms of kidney failure set in with its tight grip. After months of therapy to get him walking, eating. After months of therapy to help him cope with his vision. Years … Continue reading
Posted in Friday Photo Fun
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Let them have their fears.
Gage and Quinnlin have their fears. They are scared of bees, certain spiders, riding a bike (Q), falling, darkness, many, many fears while we are camping. During this camping trip the sounds and bugs and fears are heightened. It’s the … Continue reading
Friday Photo Fun, As She Grows Edition
At the special school for special kids in 2004. 2005. 2006. 2007. She worked hard on her muscles. Her writing. Reading. Her vision. Hard hard. She loved this playground. Welcoming to all kids, with all abilities. Friends. She saw no … Continue reading
Posted in Uncategorized
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