When Gage and Quinnlin had their transplants I was basically their consistent caregiver. Luckily I can work from home or hospital and am not tied to my office. There was a time for a long time that many of my clients didn’t know our family was going through a kidney transplant with one of our kids. By the 2nd one, I’d say that I was more used to sharing that our family was facing a medical situation.
I worked from home for 4-5 weeks for each of the transplants. The kids required twice weekly labs and clinic visits that I took them to and so, my work week was even shorter.
The impact on finances hits a family more ways than just the costs of copays and medication. Our insurance is $2,600/monthly with our deductibles for each person in our family $3,000/year to total $12,000/annually. Copays for meds, another $400-600/monthly.
In addition to those obvious costs there are the seemingly invisible costs such as missed work and income opportunities, gas for travel related to healthcare/meds, food (for to and from to save time so you can work…vicious cycle!), and bribery items and trinkets to pass the time and distract.
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