When Gage and Quinnlin had their transplants I was basically their consistent caregiver. Luckily I can work from home or hospital and am not tied to my office. There was a time for a long time that many of my clients didn’t know our family was going through a kidney transplant with one of our kids. By the 2nd one, I’d say that I was more used to sharing that our family was facing a medical situation.
I worked from home for 4-5 weeks for each of the transplants. The kids required twice weekly labs and clinic visits that I took them to and so, my work week was even shorter.
The impact on finances hits a family more ways than just the costs of copays and medication. Our insurance is $2,600/monthly with our deductibles for each person in our family $3,000/year to total $12,000/annually. Copays for meds, another $400-600/monthly.
In addition to those obvious costs there are the seemingly invisible costs such as missed work and income opportunities, gas for travel related to healthcare/meds, food (for to and from to save time so you can work…vicious cycle!), and bribery items and trinkets to pass the time and distract.
All 365 Days of Kidneys can be found here.
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