List of Five
Because I’m traveling for a board meeting for the PKD Foundation over the weekend, then Monday I’ll be speaking to first year med students (my favorite gig of the year, every year) I decided to cover 5 days of 365 Days of Kidneys with a List of Five things related to kidney transplants.
1. Part of the reason our donors (and potential donors) responded to our request to find donors is us sharing our story. We blogged and we actively told people about the kids when we were out in the world.
2. One things we didn’t think about early on in the years about the kids getting kidneys is what they would think about the donor. Did you know that young kids think they can only get a kidney from a kid or the same gender. Here’s a conversation with Gage about it (how he wanted to know the person…)
3. Kids on hemodialysis can’t submerge in water. Of all the restrictions I think Gage missed taking a real bath the most.
4. You can call a team meeting with the doctors and nurses taking care of your kids. Sometimes, you just have to when things aren’t syncing up between people.
5. If you are the caregiver or you are the patient it’s important to know that mental health concerns are even more so worrisome when you start dialysis or are in acute failure with no date/timing to come off of it. Do not ignore the early signs of depression.
If you’d like to read al of the posts started 3 months ago, you’ll find them on this link.
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I’ve followed your blog for awhile (I’m a med student planning to become a pediatrician), and I just saw this article from today: http://well.blogs.nytimes.com/2012/06/11/the-reward-for-donating-a-kidney-no-insurance/?hpw
I think it’s terrible, and I was wondering if any of the groups you’re involved with have done any advocacy on this issue?