Author Archives: Julia Roberts

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About Julia Roberts

Julia is a mom, wife, marketing account executive, advocate and volunteer raising two kids – Gage and Quinn – who’ve needed (and still do) a lot of services from the medical and public school communities. Never wanting another parent to feel alone, she co-founded SupportforSpecialNeeds.com.

365 Days of Kidneys, Day 61

Posted on May 9, 2012 by Julia Roberts

Let’s talk about shots. Both of my kids were on shots pre kidney transplant. Gage was on growth hormone (using the painless CoolClick system) and both of them were on synthetic red blood cells know as EPO or epogen. It … Continue reading →

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365 Days of Kidneys, Day 60

Posted on May 8, 2012 by Julia Roberts

One of the things I don’t think I realized, even though it’s said many times during the process, is that immune suppression can creep up on you. Listen, we’ve been pretty lucky. Even through multiple infections we’re lucky. Why? Gage … Continue reading →

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Happy Birthday to My Beloved

Posted on May 7, 2012 by Julia Roberts

Happy Birthday to the best part of my day. Love that we’re growing old together. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via Reddit Share with … Continue reading →

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365 Days of Kidneys, Day 59

Posted on May 7, 2012 by Julia Roberts

This is a great, quick read for kidney health… Keep your blood pressure at the target set by your health care provider. This can delay or prevent kidney failure. If you have diabetes, control your blood glucose level. Keep your … Continue reading →

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365 Days of Kidney, Day 58

Posted on May 6, 2012 by Julia Roberts

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365 Days of Kidneys, Day 57

Posted on May 5, 2012 by Julia Roberts

When Gage and Quinnlin were first diagnosed by a doctor on the phone (I KNOW), she told me that we’d need to get a nephrologist and I looked over at my sister and repeated what she’d said and I then … Continue reading →

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365 Days of Kidneys, Day 56

Posted on May 4, 2012 by Julia Roberts

By Gage’s kidney donor, Jody. Kidney donation – what an experience, even after five years!  Each day I am thankful that Gage’s body accepts my kidney as his own.  I am amazed at how much he’s grown and how healthy … Continue reading →

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365 Days of Kidneys, Day 55

Posted on May 3, 2012 by Julia Roberts

UNOS is a great site. It is. It stands for United Network for Organ Sharing. Dig around the site, there are some fascinating facts! When the kids were going through transplant – especially Gage because he was the first, lucky … Continue reading →

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365 Days of Kidneys, Day 54

Posted on May 2, 2012 by Julia Roberts

Talk about using social media for good. Facebook Unveils Organ Donor Status Option Well played, Facebook, well played. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via … Continue reading →

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365 Days of Kidney, Day 53

Posted on May 1, 2012 by Julia Roberts

When I wrote this 1st donor letter the evening of transplant #1 it was late. My son was in and out of pain in the ICU and we were across from a very sick little baby being cared for by … Continue reading →

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