Category Archives: A gripe

When it’s Not Fair for Our Kids

Posted on May 9, 2013 by Julia Roberts

In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend. Over a month ago during spring break, Gage ended up in the children’s hospital in … Continue reading →

Posted in A gripe, Gage's new kidney adventure, Raising special needs kids, Story telling | Tagged , , , | 4 Comments

Special needs parenting made me different, not better.

Posted on March 1, 2013 by Julia Roberts

Yesterday on The Doctors TV program they profiled a family with a 10-month-old with limb differences. It was a wonderful profile of how they found out before birth there could be an issue and when they found out he was … Continue reading →

Posted in A gripe, Raising special needs kids, Story telling | Tagged , , | 10 Comments

No insurance for kidney donors?

Posted on June 14, 2012 by Julia Roberts

365 Days of Kidneys, Day 97 & 98 A reader of my blog, Abby, has sent me an unbelievable story. A kidney donor has been denied insurance because he only has one kidney. You can read the story in the … Continue reading →

Posted in 365 Days of Kidneys, A gripe | 1 Comment

Scouting, Inclusion Policies and Special Needs

Posted on December 22, 2011 by Julia Roberts

I’ve been working on a post for a long time. I wrote about how Gage dropped out of Scouts here, and I’ve touched on Quinnlin’s struggles in her troop. I have a post up at Support for Special Needs about … Continue reading →

Posted in A gripe, Plugging SfSN site!, Raising special needs kids, Tips for parents, families and friends | 1 Comment

The Exceptions

Posted on November 8, 2011 by Julia Roberts

There are many times that families with special needs kids have to work a system. There are a lot of time constraints placed on our families because of the extra care our kids need. I won’t lie, sometimes we ask … Continue reading →

Posted in A gripe, Raising special needs kids | 1 Comment

Unexpected Photo

Posted on October 19, 2011 by Julia Roberts

Last night I was going through some photos to put one on the home page of Support for Special Needs and I was searching Quinnlin’s kidney transplant photos. I came across just 2 photos of the day we took Quinnlin … Continue reading →

Posted in A gripe, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | 1 Comment

Sensitive.

Posted on August 11, 2011 by Julia Roberts

There is a lot of talk going on about the movie The Change Up and their use of the word “retard” and “downsy” and the best post and comments I’ve seen are from my friend, Rob. He’s a brilliant writer … Continue reading →

Posted in A gripe, Raising special needs kids, Working through it. | 8 Comments

What You Don’t Know Can Hurt

Posted on May 12, 2011 by Julia Roberts

There’s a blog getting some attention because, well, mainly because it’s rude. Too Big For Stroller. It was started by a self-proclaimed “twenty-something,” who likes to take pictures of kids they believe are too old to be pushed, carried or … Continue reading →

Posted in A gripe, Raising special needs kids, Story telling | 77 Comments

On Being Right

Posted on May 4, 2011 by Julia Roberts

The post before this one about our situation with Gage’s recent bout of illness brought out this comment: So why didn’t you just put your foot down with your son & get him to the ER on Sunday where he … Continue reading →

Posted in A gripe, Raising special needs kids, What others take for granted | 14 Comments

Sunflowers and Tulips

Posted on November 18, 2010 by Julia Roberts

Not long after the kids were diagnosed with ARPKD I came across a popular essay that many people in the special needs community identify with and it’s called Welcome to Holland. It uses the comparison of raising a child with … Continue reading →

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