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Category Archives: Gage’s new kidney adventure
Talking about the realities with our kids.
Me: “MRSA can be deadly, you know.” Gage: “Yeah, Quinn, I’ve had that too.” Simultaneously Quinnlin: “WHAT?” and Julian: “Don’t tell her that.” Me: “It’s the truth. It’s not like we can hide those facts Julian, plus we have to tell them … Continue reading
When it’s Not Fair for Our Kids
In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend. Over a month ago during spring break, Gage ended up in the children’s hospital in … Continue reading
Life of Immunosuppression
Sometimes parenting a couple of kids who are immune compromised is something I don’t even think about, not really. Sometimes parenting a couple of kids who are immune compromised punches me in the face, as was the case in the … Continue reading
Six Years of Kidney Function
Six years ago today I was sitting on the bed with Gage, who was a little overwhelmed that he was about to be wheeled into surgery just minutes after we heard the words, “Her kidney is perfect!” from the team following … Continue reading
Three Years after Driving Away
Just over three years ago we got a call from Gage’s school. It wasn’t our typical call, one where we would learn he did something we should be aware of at school, or an update on some school work or … Continue reading
Posted in Gage's new kidney adventure, Going Mental
Tagged depression, pediatric mental illness
18 Comments
He owns his story.
It was dinnertime and each of us was talking about our day… was it good? Bad? Regular day? Suddenly Gage said, “I told my teacher I needed the worksheet blown up, so I asked him to make a copy of … Continue reading
The Earth is Tilting
It’s December already, right? I wasn’t sure because my Christmas shopping isn’t done yet. I am not sure how it snuck up on me but it did. So here I am, about to fill up a shopping cart online probably. … Continue reading
Vocabulary is Important
Gage and I had a good laugh at his vocabulary words tonight and how nearly all of them are related somehow to his kidney disease/failure and depression. Grotesquely Emaciated Inevitable Sauntered Distraught Despondent Intrigued Surreptitiously Mostly he was saying he … Continue reading
Posted in Gage's new kidney adventure, Story telling
2 Comments
Biopsy Schmyopsy
The results of Gage’s biopsy are not good and not bad. That is to say that while there isn’t a New Scary Disease, there are some signs that the transplant drugs are messing with Gage’s esophagus and stomach. I’ve only … Continue reading
Posted in Gage's new kidney adventure, Raising special needs kids
Tagged kidney transplant
7 Comments
To Be Beholden to Kidney Donors
I ran across something that reminded me of a time that another parent of a kidney kiddo said they preferred to have a related donor because they didn’t want to feel like they were beholden forever to someone that wasn’t … Continue reading
