- 365 Days of Kidneys
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Getting My Craft On.
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- NaBloPoMo – A post a day!
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- What others take for granted
- Working through it.
Category Archives: Kidneys in general
A couple of years ago I heard about a baby who had been born with ARPKD, as I often do when someone calls the PKD Foundation. His name was Myles. I didn’t speak to or know anything about the family … Continue reading
Our kids both have a chronic kidney disease (CKD). They are among 26 million americans who suffer from a CKD. Theirs is a rare form of a common kidney disease called Polycystic Kidney Disease. Both of us parents (unknowingly) passed … Continue reading
Quinnlin’s & Cheryl’s kidneys Yesterday my friend Cecily sent me a link to a blog post by mom, Chrissy, who had, just a day earlier, been told her daughter’s life wasn’t worth the amount of effort it would take to … Continue reading
Yesterday Quinn got a big box from Dawn shipped from Ohio. A while ago Dawn spread the word on her blog and twitter that Quinn was about to get her ears pierced and she wrote this great post about my … Continue reading
My Gage; he is complicated. No surprise to anyone out there with a routine-craving child that we’ve had some difficulty with re-entry into the real world since returning from the fabulous NYC trip. Gage has had a considerable amount of … Continue reading
Dawn sent me an email earlier to ask where in the process we were with the evaluation for Gage. I’m not suprised she is confused, because, frankly, I am confused. I’ve been going so much on Momma-Just-Get-It-Done- Instinct that I … Continue reading
This much I know. The reason I know this is because I do it a lot in the care of my kids and they do it a lot. We wait for results of tests, we wait in waiting rooms, we … Continue reading
Ever since I was invovled with the PKD Foundation when Quinn was 4 months old I’ve let them use our family story for awareness. At first, I didn’t think much about it. Since then I’ve had to weigh the pros … Continue reading
You know who I am talking about . All of you staff people at the PKD Foundation…I would be talking to you. And about you. I realize I am only 2 days post Convention, but I had to say THANKS … Continue reading