Category Archives: Quinn’s new kidney adventure

Talking about the realities with our kids.

Me: “MRSA can be deadly, you know.” Gage: “Yeah, Quinn, I’ve had that too.” Simultaneously Quinnlin: “WHAT?” and Julian: “Don’t tell her that.” Me: “It’s the truth. It’s not like we can hide those facts Julian, plus we have to tell them … Continue reading

Posted in Gage's new kidney adventure, Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Tagged , , , , | 1 Comment

Spoken in the Mutant Family Household, ER Edition

Quinnlin (on the way to the hospital, reaching for lip gloss in my car): “Can I use your lip gloss?” Me: “Of course, but you know we’re on the way to the hospital, right? You probably don’t need lip gloss.” … Continue reading

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She is brave.

Written by Quinnlin, February 2013 ————- I am brave because of my swimming tryouts, haunted houses, and my kidney transplant. I will tell you things about them. My swimming tryouts were scary because I couldn’t do a flip turn. I … Continue reading

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To Be Beholden to Kidney Donors

I ran across something that reminded me of a time that another parent of a kidney kiddo said they preferred to have a related donor because they didn’t want to feel like they were beholden forever to someone that wasn’t … Continue reading

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For Quinnlin

No. 11 A smiling, fun girl Who loves to swim and dance And have best friends She who is animated, silly, and tall A girl who enhances my life by a hug, a kiss She’s vulnerable, yet strong A writer … Continue reading

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Three Years of Kidney Function

Quinnlin will tell you that it was a long time ago that she got a kidney from “Ms. Cheryl” when in fact it was a few short years ago. Tomorrow, which is also Quinnlin’s birthday, is three years or 36 … Continue reading

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Being Eleven

Quinn, Quinny, Quinnlin The doctor said “Take her home and love her as long as you have her.” That. We have done Running towards year 11, strong and resilient Celebrating her life isn’t about a birthday milestone It’s celebrating life … Continue reading

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Not Our First Rodeo

We’ve been fighting some warts over the last several months on Quinnlin’s arm. It’s not been easy because she is immunosuppressed. One of the area on her became infected over the weekend and it looked an awful lot like the … Continue reading

Posted in Quinn's new kidney adventure, Raising special needs kids, What others take for granted | 8 Comments

Why the Walk for PKD?

Quinnlin says it best. We’ve been involved with the PKD Foundation for over 10 years. For years I was the Walk and Chapter Coordinator in Atlanta but a new, terrific group of people have taken over. I am still working … Continue reading

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When “normal” kicks back.

See that picture? It’s a (presumed) bug bite on Quinnlin’s leg. Yes, it has a circle drawn around it in ink pen. Doesn’t everyone do that when their kid gets a bug bite? Yeah. No. They do not. When I … Continue reading

Posted in Quinn's new kidney adventure, Raising special needs kids, Spoken in the Mutant Family, Uncategorized | Tagged , , | 13 Comments