-
-
Recent Posts
Recent Comments
Archives
Categories
- 365 Days of Kidneys
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Getting My Craft On.
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- Uncategorized
- What others take for granted
- Working through it.
Category Archives: Quinn’s new kidney adventure
It was good, it was bad.
So, my last post in 2010 is well, late in the day. I’ve been reflecting on the past year and coming up to the realization that it was both filled with joy and sadness. Our family struggles were heavy this … Continue reading
Obsessive Planning
A little over a month ago when we met the ENT doctor both Quinnlin and I liked him immediately. He talked to her first, he asked her questions, he was patient when she asked him questions. It was good. His … Continue reading
An affirmative no.
Quinnlin is scheduled for surgery next Tuesday. Well, I should say I have her scheduled and her doctor has her scheduled but the hospital doesn’t have her scheduled. We were there today to speak with anesthesia and get clearance, get … Continue reading
Posted in Quinn's new kidney adventure
1 Comment
Doctor love.
Isn’t it fantastic when you connect with a doctor you know is skilled, has compassion, great follow-through, is cautious but realistic and thorough? I know. You have to get up off the floor, right? All those qualities in ONE doctor? … Continue reading
Immunity from nothing.
The immune system is an important thing in case you didn’t know. When you have a kidney transplant your body has to be tricked into thinking that the foreign organ in your body is yours, so they load you up … Continue reading
Posted in Quinn's new kidney adventure
4 Comments
Monday, Funday!
Or rather List Day. Let’s face it, it’s easier. It means that for one day this month I can just ramble on and it sort of serves as my planning for my To Do list (or it’s a good representation … Continue reading
The Medication Chase
Eight days ago I ordered medication from the new company that merged with or bought our old mail order pharmacy. CuraScript was now the company I needed to order from and no longer Precision Specialty RX. The mess that is … Continue reading
Walk for PKD
It’s that time again. November 13 in Atlanta we’re going to be gathering a bunch of people together to bring awareness and funds for PKD. This picture is Walk for PKD circa 2006. Just one week before Gage started dialysis. … Continue reading
Body Ownership for Special Needs Children
Since Gage was 3 and Quinnlin was born their bodies have been in a tug-of-war with themselves and the medical community. Too many lab draws to count, so many tests your head would spin, and an over abundance of procedures, … Continue reading
Friday Photo Fun, The Two Kidneys
It was grand to have two kidney donors and two kidney recipients together to celebrate one year of kidney function for Quinnlin. Yes, why that is a kidney shaped cake! We only ate 1/2. The rest is frozen! Thanks Cheryl, … Continue reading
