- 365 Days of Kidneys
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Getting My Craft On.
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- NaBloPoMo – A post a day!
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- What others take for granted
- Working through it.
Category Archives: Raising special needs kids
For the last nine years, we’ve sent Gage and Quinnlin off to our small neighborhood elementary school. This week marks the transition to middle school for our youngest, which means we give up the safe, nurturing environment of that special … Continue reading
I am not sure when I knew I’d get through some hard times with my marriage to Julian intact but I am sure I thought it would be when we said, “Yes” and “I do” in 1994, but it wasn’t. … Continue reading
In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend. Over a month ago during spring break, Gage ended up in the children’s hospital in … Continue reading
Last Friday I traveled to New York and carried my bag off the plane to load them up in the car of a friend who lives there. Michele, co-coordinates the chapter that serves the ARPKD/CHF and Pediatric ADPKD population through the … Continue reading
Written by Quinnlin, February 2013 ————- I am brave because of my swimming tryouts, haunted houses, and my kidney transplant. I will tell you things about them. My swimming tryouts were scary because I couldn’t do a flip turn. I … Continue reading
I wanted to do several different posts for these updates, but that clearly isn’t going to happen (see how my posts are few and far between?) so I’m going to brain dump right now. Good with that? Okay, let’s go. … Continue reading
Yesterday on The Doctors TV program they profiled a family with a 10-month-old with limb differences. It was a wonderful profile of how they found out before birth there could be an issue and when they found out he was … Continue reading
Happy Valentine’s Day to all of you. To my husband, who is on this journey with me and especially all of you parents and caregivers who are raising kids with special needs. You’re incredible people, and I’m in constant awe … Continue reading
It was dinnertime and each of us was talking about our day… was it good? Bad? Regular day? Suddenly Gage said, “I told my teacher I needed the worksheet blown up, so I asked him to make a copy of … Continue reading