Category Archives: Raising special needs kids

School, Bears, & Tears

Posted on May 17, 2012 by Julia Roberts

This is going to be one of those posts where I have a lot in my head but don’t want to enter in 4 different posts, so this is what you get. “You get what you get and you don’t … Continue reading →

Posted in Plugging SfSN site!, Raising special needs kids, Story telling | Tagged , , , , | Leave a comment

(Special Needs) Motherhood, You and Me

Posted on May 13, 2012 by Julia Roberts

Today I honor all mothers…young and old, and attachement style moms, birth mothers, step mothers, mothers of all kinds. Liberal or conservative mothers, I honor you. I honor moms who breastfeed or bottle feed and the mothers whose kids play … Continue reading →

Posted in Raising special needs kids | 3 Comments

Grabbing Joy

Posted on April 21, 2012 by Julia Roberts

There are a lot of times sick kids get extras. In the past, I’ve talked about how uncomfortable it felt to accept these perks knowing the only reason we enjoy them is because the kids have a life-threatening condition. The … Continue reading →

Posted in Raising special needs kids, Story telling, Uncategorized | Tagged , , | 4 Comments

Judge Thee Not (and from Thyself)

Posted on April 15, 2012 by Julia Roberts

We are dealing with a lot of behaviors that stem from anxiety in Gage. He’s feeling the pressure of the end of 6th grade and of expectations and also perhaps there are the adolescence joys of growing up going on … Continue reading →

Posted in Raising special needs kids | 4 Comments

Dear People,

Posted on April 11, 2012 by Julia Roberts

It’s been a truly long time since I’ve done a Dear People post. Today is the day. Dear Quinnlin, I know you want a Guinea Pig. I know your dad does not want you to have it. If you listen to … Continue reading →

Posted in Raising special needs kids, Spoken in the Mutant Family, Story telling, What others take for granted | 33 Comments

Firing the Pediatrician

Posted on March 21, 2012 by Julia Roberts

Remember when I sent this letter to my pediatrician? Our pediatrician of 10 years. I faxed it twice because the founder of the practice did not respond to it the first time I faxed it. You know, benefit of the doubt. Then … Continue reading →

Posted in Raising special needs kids, What others take for granted | 4 Comments

Track

Posted on March 15, 2012 by Julia Roberts

Gage tried out and joined the track team. Everyone who tried out made it because they were smaller than in years past – only 17 kids out of the 95 kids in school are on the team. We were thrilled … Continue reading →

Posted in Raising special needs kids, Story telling, Uncategorized, What others take for granted | 3 Comments

World Kidney Day x2

Posted on March 8, 2012 by Julia Roberts
http://www.youtube.com/watch?v=08ESCRSW5_A&list=HL1331177636&feature=mh_lolz

In honor of World Kidney Day, I made this video to promote kidney donation. Thanks Jody and Cheryl for making this video possible. Thanks for letting us use our story for greater awareness for ARPKD and kidney donation on this, … Continue reading →

Posted in Gage's new kidney adventure, Quinn's new kidney adventure, Raising special needs kids | 3 Comments

Girl Scouts and Special Needs

Posted on February 22, 2012 by Julia Roberts

I wrote an article a while back on Support for Special Needs about Scouting and Inclusiveness. It fits nicely with what is going on now because Quinnlin will be enjoying Camporee soon with her new (truly inclusive) troop and making … Continue reading →

Posted in Raising special needs kids | Tagged , | 2 Comments

Ode to You on Valentine’s Day

Posted on February 14, 2012 by Julia Roberts

To all the parents and caregivers out there of kids with differences, learning, developmental, physical, medical, mental, quirky. For anyone who has a child that struggles. I’m talking to you. You know what? I think you are amazing and this … Continue reading →

Posted in Raising special needs kids | 25 Comments