Category Archives: Raising special needs kids

Surrounded by the love of a public school.

http://youtu.be/kKWqUgS5Vbo

For the last nine years, we’ve sent Gage and Quinnlin off to our small neighborhood elementary school. This week marks the transition to middle school for our youngest, which means we give up the safe, nurturing environment of that special … Continue reading

Posted in Raising special needs kids, Story telling, What others take for granted | 2 Comments

For better or worse. Or worse.

I am not sure when I knew I’d get through some hard times with my marriage to Julian intact but I am sure I thought it would be when we said, “Yes” and “I do” in 1994, but it wasn’t. … Continue reading

Posted in General Family, Raising special needs kids, Story telling, What others take for granted | 10 Comments

When it’s Not Fair for Our Kids

In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend. Over a month ago during spring break, Gage ended up in the children’s hospital in … Continue reading

Posted in A gripe, Gage's new kidney adventure, Raising special needs kids, Story telling | Tagged , , , | 4 Comments

Among My People

Last Friday I traveled to New York and carried my bag off the plane to load them up in the car of a friend who lives there. Michele, co-coordinates the chapter that serves the ARPKD/CHF and Pediatric ADPKD population through the … Continue reading

Posted in Raising special needs kids, Story telling, What others take for granted | Tagged , , , , , | 1 Comment

She is brave.

Written by Quinnlin, February 2013 ————- I am brave because of my swimming tryouts, haunted houses, and my kidney transplant. I will tell you things about them. My swimming tryouts were scary because I couldn’t do a flip turn. I … Continue reading

Posted in Quinn's new kidney adventure, Raising special needs kids, What others take for granted | Tagged , , , | 10 Comments

The Happenings

I wanted to do several different posts for these updates, but that clearly isn’t going to happen (see how my posts are few and far between?) so I’m going to brain dump right now. Good with that? Okay, let’s go. … Continue reading

Posted in Plugging SfSN site!, Raising special needs kids, Story telling, What others take for granted | 2 Comments

Special needs parenting made me different, not better.

Yesterday on The Doctors TV program they profiled a family with a 10-month-old with limb differences. It was a wonderful profile of how they found out before birth there could be an issue and when they found out he was … Continue reading

Posted in A gripe, Raising special needs kids, Story telling | Tagged , , | 10 Comments

Sharing Love about The Incredible You

Happy Valentine’s Day to all of you. To my husband, who is on this journey with me and especially all of you parents and caregivers who are raising kids with special needs. You’re incredible people, and I’m in constant awe … Continue reading

Posted in Raising special needs kids, Story telling | 1 Comment

He owns his story.

It was dinnertime and each of us was talking about our day… was it good? Bad? Regular day? Suddenly Gage said, “I told my teacher I needed the worksheet blown up, so I asked him to make a copy of … Continue reading

Posted in Gage's new kidney adventure, Raising special needs kids | 11 Comments

Friday Photo Fun

Quinnlin had the chance through the Make-W-Wish Foundation to see Hunter Hayes and meet him through the radio station The Bull 94.9 and Macy’s. Do you know him? Sweetheart of a young man. So gracious and nice (That statement makes … Continue reading

Posted in Raising special needs kids, Story telling | 1 Comment