Category Archives: Story telling

Surrounded by the love of a public school.

Posted on May 22, 2013 by Julia Roberts
http://youtu.be/kKWqUgS5Vbo

For the last nine years, we’ve sent Gage and Quinnlin off to our small neighborhood elementary school. This week marks the transition to middle school for our youngest, which means we give up the safe, nurturing environment of that special … Continue reading →

Posted in Raising special needs kids, Story telling, What others take for granted | 2 Comments

For better or worse. Or worse.

Posted on May 15, 2013 by Julia Roberts

I am not sure when I knew I’d get through some hard times with my marriage to Julian intact but I am sure I thought it would be when we said, “Yes” and “I do” in 1994, but it wasn’t. … Continue reading →

Posted in General Family, Raising special needs kids, Story telling, What others take for granted | 10 Comments

This Mother Wants

Posted on May 12, 2013 by Julia Roberts

On Friday I was in an ER room with my son, who now feels fine (I know!), he’s playing a game on his phone and holding a stuffed animal, which is what he does when we’re here. I was thinking … Continue reading →

Posted in Story telling, What others take for granted | 3 Comments

When it’s Not Fair for Our Kids

Posted on May 9, 2013 by Julia Roberts

In what can only be described as Not Fair, Gage has decided to cancel his Spring Break Redo trip we had planned for the weekend. Over a month ago during spring break, Gage ended up in the children’s hospital in … Continue reading →

Posted in A gripe, Gage's new kidney adventure, Raising special needs kids, Story telling | Tagged , , , | 4 Comments

Among My People

Posted on April 6, 2013 by Julia Roberts

Last Friday I traveled to New York and carried my bag off the plane to load them up in the car of a friend who lives there. Michele, co-coordinates the chapter that serves the ARPKD/CHF and Pediatric ADPKD population through the … Continue reading →

Posted in Raising special needs kids, Story telling, What others take for granted | Tagged , , , , , | 1 Comment

Life of Immunosuppression

Posted on April 4, 2013 by Julia Roberts

Sometimes parenting a couple of kids who are immune compromised is something I don’t even think about, not really. Sometimes parenting a couple of kids who are immune compromised punches me in the face, as was the case in the … Continue reading →

Posted in Gage's new kidney adventure, Story telling, What others take for granted | 6 Comments

Six Years of Kidney Function

Posted on March 27, 2013 by Julia Roberts

Six years ago today I was sitting on the bed with Gage, who was a little overwhelmed that he was about to be wheeled into surgery just minutes after we heard the words, “Her kidney is perfect!” from the team following … Continue reading →

Posted in Gage's new kidney adventure, Story telling, What others take for granted | 1 Comment

A Brooklyn Wedding

Posted on March 26, 2013 by Julia Roberts

Seven or eight years ago my sister, who lives in Minnesota, knew a young woman who was moving to Georgia and wanted to introduce us to her as a potential babysitter for the kids. We loved her immediately. We called Kate … Continue reading →

Posted in Story telling | Tagged | 14 Comments

List post. Because I can.

Posted on March 24, 2013 by Julia Roberts

Seems an appropriate time for a list post because, well, it’s Sunday night. I can’t wait to see this documentary on an undiscovered street photographer. The story is about a guy who bought 100k negatives at an auction (under $400) … Continue reading →

Posted in Story telling | 1 Comment

Healing through music.

Posted on March 19, 2013 by Julia Roberts

A couple of years ago I heard about a baby who had been born with ARPKD, as I often do when someone calls the PKD Foundation. His name was Myles. I didn’t speak to or know anything about the family … Continue reading →

Posted in Kidneys in general, Story telling, What others take for granted | Tagged , , , , , | Leave a comment