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Category Archives: Story telling
School, Bears, & Tears
This is going to be one of those posts where I have a lot in my head but don’t want to enter in 4 different posts, so this is what you get. “You get what you get and you don’t … Continue reading
The Catapult Experiment
Last Friday we visited Gage’s school for what was the exhibit of the school’s science fair. Gage spent a couple of months on an experiment using a catapult to see if a long arm or short arm or if pulling … Continue reading
Happy Birthday to My Beloved
Happy Birthday to the best part of my day. Love that we’re growing old together. Post Footer automatically generated by Add Post Footer Plugin for wordpress. Bookmark on Delicious Digg this post Recommend on Facebook share via Reddit Share with … Continue reading
Posted in Story telling
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The Big Trip on The Big Boat
I was fortunate enough to get to spend a week with Quinnlin at sea on the Disney cruise ship Magic and we had a fabulous time. We played at the pool, napped, saw shows, movies and laughed. We did whatever … Continue reading
Grabbing Joy
There are a lot of times sick kids get extras. In the past, I’ve talked about how uncomfortable it felt to accept these perks knowing the only reason we enjoy them is because the kids have a life-threatening condition. The … Continue reading
Posted in Raising special needs kids, Story telling, Uncategorized
Tagged DIRECTV Blimp, helping sick kids, make-a-wish
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Dear People,
It’s been a truly long time since I’ve done a Dear People post. Today is the day. Dear Quinnlin, I know you want a Guinea Pig. I know your dad does not want you to have it. If you listen to … Continue reading
Around Here & There
I’m finally back from a long vacation with Quinnlin (it was fab, let me tell you) to find that a very sweet blogger, Stacey, has posted an interview I did for her Many Branches, One Tree series on her blog, … Continue reading
Posted in Story telling
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Forcing Me To See
In the midst of my telling of 365 things about kidneys I’ve been forced to remember a lot. The tidbits come from information based on our life experience and of course, that involves the kids. I’m stunned about how much … Continue reading
Posted in Story telling, What others take for granted
Tagged ARPKD, Build-A-Bear Workshop, kidneys, PKD, special needs support
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Track
Gage tried out and joined the track team. Everyone who tried out made it because they were smaller than in years past – only 17 kids out of the 95 kids in school are on the team. We were thrilled … Continue reading
A List of Incredible & Not Incredible Things
It’s been a big week at Casa de Kidneys and Eyes… – First, a big announcement that I’m working with Build-A-Bear Workshop for Support for Special Needs. They’ve asked us to share Quinnlin’s experience with special needs through her eyes … Continue reading
Posted in Plugging SfSN site!, Story telling
Tagged Build-A-Bear, Build-A-Bear Workshop, Quinnlin, special needs
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