Category Archives: Story telling

Who deserves a kidney? CHOP says no kidney for Amelia.

Quinnlin’s & Cheryl’s kidneys Yesterday my friend Cecily sent me a link to a blog post by mom, Chrissy, who had, just a day earlier, been told her daughter’s life wasn’t worth the amount of effort it would take to … Continue reading

Posted in Kidneys in general, Raising special needs kids, Story telling, What others take for granted | Tagged , , , , | 20 Comments

Letting go of the shame.

I can’t talk about being so depressed that I wanted to die. I’ve not been there. I can only tell you that I know it feels desperate, and real and dark and like it will never end. I can tell … Continue reading

Posted in Going Mental, Raising special needs kids, Story telling | Tagged , , , | 12 Comments

11 and 12 Things

Happy New Year from our Family! Yes, the picture in the bottom, right corner is the photo that represents The Fun Couple. Happy New Year from them, specifically. 11 Things About 2011 1. 2011 was the year Gage left elementary … Continue reading

Posted in Story telling | 1 Comment

Proof of Something Bigger Than Us

So, there’s a kismet, coincidence, luck, God, the Goddess, or just plain unbelievable thing that has happened. To us. Our family. Here’s the back story. A month an a half ago, maybe two, the kids were being knuckleheads about something. … Continue reading

Posted in Story telling, What others take for granted | 8 Comments

Dear Quinnlin, with a lin.

Dear Quinnlin, Being 10 is big! It’s a decade. It’s officially double-digits and now I can no longer deny your approaching teenhood. It was so much easier ignoring in your 0-9th years on the planet. Happy Birthday! This past year…so … Continue reading

Posted in Quinn's new kidney adventure, Story telling | 3 Comments

Thanksgiving and Us

I wish I had the talent to write this post from my friend, Rob because it does sum up a lot of how I feel. One of the reasons I find it difficult is because I feel beholden to tell … Continue reading

Posted in Raising special needs kids, Story telling, What others take for granted | 5 Comments

Macy’s Thanksgiving Day Parade and Occupied Threats

I read this story that the protestors of Occupy Wall Street fame have been threatening to disrupt the Thanksgiving Day Parade and I sincerely hope they do not, or if they do, I hope it’s contained quickly without interruption or … Continue reading

Posted in Raising special needs kids, Story telling, What others take for granted | Tagged , , | 1 Comment

Learning Personal Loss

Firs of all, that’s our dog, Lucy. She’s fine. This is about animals and our current connection to them as a family. And Gage’s story about pet ownership and loss. Our family spent a lot of years in survival mode … Continue reading

Posted in Raising special needs kids, Story telling | 5 Comments

Spoken in the Mutant Family Household

Watching Bugs Bunny and Elmer Fudd Quinnlin: “They need speech.” (as in therapy) ————- Quinnlin: “Gage, you are SO MEAN!” Gage: “That’s what brothers are for.” ———– Quinnlin: “I love these boots so much.” Me: “I’m so glad, they look … Continue reading

Posted in Story telling | 2 Comments

The Decade Birthday

      Dear Quinnlin, You’re 10! Well, that’s not EXACTLY true, you’re 10 years old plus 7 1/2 days. I tell you that because you like the details. You’ve had an amazing year. From your 9th birthday to your … Continue reading

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