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Category Archives: Tips for parents, families and friends
My Responsibility as a Special Needs Parent
It’s my responsibility… - to love them for them and never try to change the core of who they are, - to make my kids’ lives as easy as possible where their disabilities are concerned, - to ask that exceptions … Continue reading
Scouting, Inclusion Policies and Special Needs
I’ve been working on a post for a long time. I wrote about how Gage dropped out of Scouts here, and I’ve touched on Quinnlin’s struggles in her troop. I have a post up at Support for Special Needs about … Continue reading
Let them have their fears.
Gage and Quinnlin have their fears. They are scared of bees, certain spiders, riding a bike (Q), falling, darkness, many, many fears while we are camping. During this camping trip the sounds and bugs and fears are heightened. It’s the … Continue reading
Time for Nothing and Everything
One thing I know for sure is that I need time for myself. I am at the beach relaxing and sleeping and relaxing. The thing about living with the stress of kids who have special needs is that there isn’t … Continue reading
Public Service Annoucement
Several months ago someone contacted me telling me that they wanted to send the kids a book about a dog that had to have a kidney transplant. The dog’s name is Rudy. The book is Rudy Gets a Transplant. As … Continue reading
"How can I help?"
We hear those words a lot. I know everyone else involved with a crisis hear that from their family and friends too. But I’ve learned over the years (honestly it’s coming up on 8 years) to take the help. Find … Continue reading
A Lesson on Not Being Liked.
When you are caring for a couple of sick kids it means you have to be in front of a lot of health care professionals. Doctors, nurses, assistants, insurance staff/accounting, technicians, clerks. You come into contact with a lot of … Continue reading
Giving artists.
An email found its way into my inbox today and reminded me of photography services offered (for FREE) to people during difficult and joyous times in their lives. www.celebratingadoption.org – (this has music) This organization offers sessions for families that … Continue reading
Don't be afraid to talk to us.
Ever since I can remember on the day Quinn was diagnosed with ARPKD friends and family surrounding us with care and concern. We were bombarded with calls, emails, cards and letters full of love expressing how sorry they were that … Continue reading
Get ready to have an enormous amount of people in your life.
I had a meeting with a new speech therapist at Gage’s school today about his motivation (or lack thereof) in speech therapy. He has two sessions a week for 30 minutes each and there are two different therapists. She mentioned … Continue reading
