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Category Archives: Uncategorized
Where I Am
Every once in a while I get to write that I’ve written in some other places and today is one of those days. BlogHer - I’m so proud to have a post on BlogHer for their Being a Mother Made Me … Continue reading
Posted in Uncategorized
Tagged julia roberts, kidneys and eyes, special needs, special needs support
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The mother and person I became. Day 5
A few minutes after Gage was born I held him in my arms I looked up at my beloved and didn’t have the words to express what I was feeling. Gage made me a mother. It was a year … Continue reading
Why the Walk for PKD?
Quinnlin says it best. We’ve been involved with the PKD Foundation for over 10 years. For years I was the Walk and Chapter Coordinator in Atlanta but a new, terrific group of people have taken over. I am still working … Continue reading
Can you help my friend? UPDATED BELOW, AGAIN
Update: Wednesday, July 11. – I’m in awe of the Internet Peoples (that’s Quinnlin’s term for you all) and for what they gave to J and her sons to help protect them. Just this morning she texted me that the … Continue reading
When “normal” kicks back.
See that picture? It’s a (presumed) bug bite on Quinnlin’s leg. Yes, it has a circle drawn around it in ink pen. Doesn’t everyone do that when their kid gets a bug bite? Yeah. No. They do not. When I … Continue reading
365 Days of Kidneys, Day 57
When Gage and Quinnlin were first diagnosed by a doctor on the phone (I KNOW), she told me that we’d need to get a nephrologist and I looked over at my sister and repeated what she’d said and I then … Continue reading
Posted in 365 Days of Kidneys, Uncategorized
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Grabbing Joy
There are a lot of times sick kids get extras. In the past, I’ve talked about how uncomfortable it felt to accept these perks knowing the only reason we enjoy them is because the kids have a life-threatening condition. The … Continue reading
Posted in Raising special needs kids, Story telling, Uncategorized
Tagged DIRECTV Blimp, helping sick kids, make-a-wish
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365 Days of Kidney, Day 29
Dialysis catheters = infections. It is a known fact that when you have a piece of tubing going into your body with multiple people touching it, it is just going to get infected. Fighting the infection can be hard when … Continue reading
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365 Days of Kidneys, Day 21
When our kids end up in the emergency room we always have to wait on the kidney team to respond. I think only once we didn’t and that was when Quinnlin broke her collar bone. It’s one of those things … Continue reading
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Track
Gage tried out and joined the track team. Everyone who tried out made it because they were smaller than in years past – only 17 kids out of the 95 kids in school are on the team. We were thrilled … Continue reading
