Category Archives: What others take for granted

The Big Trip on The Big Boat

I was fortunate enough to get to spend a week with Quinnlin at sea on the Disney cruise ship Magic and we had a fabulous time. We played at the pool, napped, saw shows, movies and laughed. We did whatever … Continue reading

Posted in Nothing to do with kidneys, Story telling, What others take for granted | 1 Comment

Dear People,

It’s been a truly long time since I’ve done a Dear People post. Today is the day. Dear Quinnlin, I know you want a Guinea Pig. I know your dad does not want you to have it. If you listen to … Continue reading

Posted in Raising special needs kids, Spoken in the Mutant Family, Story telling, What others take for granted | 33 Comments

Forcing Me To See

In the midst of my telling of 365 things about kidneys I’ve been forced to remember a lot. The tidbits come from information based on our life experience and of course, that involves the kids. I’m stunned about how much … Continue reading

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Firing the Pediatrician

Remember when I sent this letter to my pediatrician? Our pediatrician of 10 years. I faxed it twice because the founder of the practice did not respond to it the first time I faxed it. You know, benefit of the doubt. Then … Continue reading

Posted in Raising special needs kids, What others take for granted | 4 Comments

Track

Gage tried out and joined the track team. Everyone who tried out made it because they were smaller than in years past – only 17 kids out of the 95 kids in school are on the team. We were thrilled … Continue reading

Posted in Raising special needs kids, Story telling, Uncategorized, What others take for granted | 3 Comments

Two Years after Driving Away

Two years ago tomorrow (around lunchtime) my beloved and I drove our son to a mental hospital to admit him for an unknown amount of time. It was for his safety. It was for his mental state. It was the … Continue reading

Posted in Going Mental, Raising special needs kids, What others take for granted | Tagged , , , | 14 Comments

Being Different and Knowing

Quinnlin stepped into the car yesterday during carpool where a snack and juice box waited for her to devour. “How was your day, honey?” I said, like I do every day she bounces in my car. On this day she … Continue reading

Posted in Raising special needs kids, What others take for granted | 34 Comments

My Responsibility as a Special Needs Parent

It’s my responsibility… -       to love them for them and never try to change the core of who they are, -       to make my kids’ lives as easy as possible where their disabilities are concerned, -       to ask that exceptions … Continue reading

Posted in Raising special needs kids, Tips for parents, families and friends, What others take for granted | Tagged , | 4 Comments

Who deserves a kidney? CHOP says no kidney for Amelia.

Quinnlin’s & Cheryl’s kidneys Yesterday my friend Cecily sent me a link to a blog post by mom, Chrissy, who had, just a day earlier, been told her daughter’s life wasn’t worth the amount of effort it would take to … Continue reading

Posted in Kidneys in general, Raising special needs kids, Story telling, What others take for granted | Tagged , , , , | 21 Comments

Always, change.

One thing is a given in our world and that is change. It can be for the better or for the worse, but change will come. We will either welcome it, as we did with Gage’s mental health stability, or … Continue reading

Posted in Gage's new kidney adventure, Raising special needs kids, What others take for granted | Tagged , , | 5 Comments