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- What others take for granted
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Category Archives: What others take for granted
The Big Trip on The Big Boat
I was fortunate enough to get to spend a week with Quinnlin at sea on the Disney cruise ship Magic and we had a fabulous time. We played at the pool, napped, saw shows, movies and laughed. We did whatever … Continue reading
Dear People,
It’s been a truly long time since I’ve done a Dear People post. Today is the day. Dear Quinnlin, I know you want a Guinea Pig. I know your dad does not want you to have it. If you listen to … Continue reading
Forcing Me To See
In the midst of my telling of 365 things about kidneys I’ve been forced to remember a lot. The tidbits come from information based on our life experience and of course, that involves the kids. I’m stunned about how much … Continue reading
Posted in Story telling, What others take for granted
Tagged ARPKD, Build-A-Bear Workshop, kidneys, PKD, special needs support
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Firing the Pediatrician
Remember when I sent this letter to my pediatrician? Our pediatrician of 10 years. I faxed it twice because the founder of the practice did not respond to it the first time I faxed it. You know, benefit of the doubt. Then … Continue reading
Track
Gage tried out and joined the track team. Everyone who tried out made it because they were smaller than in years past – only 17 kids out of the 95 kids in school are on the team. We were thrilled … Continue reading
Two Years after Driving Away
Two years ago tomorrow (around lunchtime) my beloved and I drove our son to a mental hospital to admit him for an unknown amount of time. It was for his safety. It was for his mental state. It was the … Continue reading
Being Different and Knowing
Quinnlin stepped into the car yesterday during carpool where a snack and juice box waited for her to devour. “How was your day, honey?” I said, like I do every day she bounces in my car. On this day she … Continue reading
My Responsibility as a Special Needs Parent
It’s my responsibility… - to love them for them and never try to change the core of who they are, - to make my kids’ lives as easy as possible where their disabilities are concerned, - to ask that exceptions … Continue reading
Who deserves a kidney? CHOP says no kidney for Amelia.
Quinnlin’s & Cheryl’s kidneys Yesterday my friend Cecily sent me a link to a blog post by mom, Chrissy, who had, just a day earlier, been told her daughter’s life wasn’t worth the amount of effort it would take to … Continue reading
Always, change.
One thing is a given in our world and that is change. It can be for the better or for the worse, but change will come. We will either welcome it, as we did with Gage’s mental health stability, or … Continue reading
