- 365 Days of Kidneys
- A gripe
- Friday Photo Fun
- Gage's liver
- Gage's new kidney adventure
- General Family
- Getting My Craft On.
- Going Mental
- Good behavior doesn't come cheap
- Homespun Therapy
- Kidneys in general
- NaBloPoMo – A post a day!
- Nothing to do with kidneys
- Plugging SfSN site!
- Quinn's new kidney adventure
- Quinnlin's liver
- Raising special needs kids
- Spoken in the Mutant Family
- Story telling
- Tips for parents, families and friends
- What others take for granted
- Working through it.
Tag Archives: ARPKD
Last Friday I traveled to New York and carried my bag off the plane to load them up in the car of a friend who lives there. Michele, co-coordinates the chapter that serves the ARPKD/CHF and Pediatric ADPKD population through the … Continue reading
A couple of years ago I heard about a baby who had been born with ARPKD, as I often do when someone calls the PKD Foundation. His name was Myles. I didn’t speak to or know anything about the family … Continue reading
Written by Quinnlin, February 2013 ————- I am brave because of my swimming tryouts, haunted houses, and my kidney transplant. I will tell you things about them. My swimming tryouts were scary because I couldn’t do a flip turn. I … Continue reading
I love this picture of President/CEO Gary Godsey of the PKD Foundation at the Board of Trustees meeting this weekend in Atlanta. He was animated, talking about something strategic and he’s serious. We’re so unbelievably lucky to have him leading … Continue reading
My BFF Carol comes over nearly every Friday night. Sometime during the day we text about who has what in their fridge and we figure out the menu. By menu I mean anything around steaks, because these Friday night rituals … Continue reading
A few minutes after Gage was born I held him in my arms I looked up at my beloved and didn’t have the words to express what I was feeling. Gage made me a mother. It was a year … Continue reading
Quinnlin says it best. We’ve been involved with the PKD Foundation for over 10 years. For years I was the Walk and Chapter Coordinator in Atlanta but a new, terrific group of people have taken over. I am still working … Continue reading
This morning we woke up like any other first full day at the beach and made breakfast and set out to bike ride, buy flip flops (yeah, I forgot them) and swim in the pool at our luxury 1950 cinderblock … Continue reading
So, I’ve been gone for 30 Days of Kidneys, which is ironic since we’ve been busy taking care of kidneys. And teeth. And general health. As is the summer time around here, we squish all of our check ups for … Continue reading